Parent Willingness to Participate in Tobacco Trials in the Pediatric Clinical Setting

Following a Behavioral Ecological Model (BEM), this study will assess factors that influence parent's willingness to participate in tobacco trials that emphasize cessation or promotion of smoke-free homes/cars while identifying barriers for implementing these strategies. Information will be obtained from questionnaires completed by parents. This information will be used to suggest an appropriate emphasis for intervention, refine our recruitment strategies, design interventions that maximize participation rates and retention, and better direct our resources and future tobacco control efforts for patients and their families.

PRIMARY OBJECTIVE:

• To estimate the proportion of smoking parents of children with cancer, children with sickle cell disease (SCD), and childhood cancer survivors who are willing to participate in tobacco trials offered in the context of their child's medical care.

CHILD INCLUSION CRITERIA:

• SJCRH patient with a diagnosis of cancer or sickle cell disease (to include genotypes HbSS, HbSC, HbSβ°thal, HbSβ+thal, HbSD, HbSO, Hb S/HPFH, HbSE).
• <18 years of age at time of enrollment.
• For patients with cancer, those who are at least one month from diagnosis (to include patients in active treatment section, as well as, survivors in After Completion of Therapy clinic).

CHILD EXCLUSION CRITERIA:

• For patients with cancer, those who have relapsed or had disease recurrence within the past month.
• For patients with cancer, those who have progressive disease.
• In medical crisis, as determined by consultation with the patient's primary care physician.
• On transplant service.
• On inpatient service or expected/scheduled inpatient admission (e.g. hospitalized).
• Experiencing current acute complications of sickle cell disease requiring hospitalization or an acute care visit (e.g., pain crises, acute chest syndrome, acute cerebrovascular events/stroke or active infection/fever, etc.).

PARENT INCLUSION CRITERIA:

• One parent, who is 18 years of age or older, per family of a SJCRH patient who meets criteria.
• Current smoker (defined as having smoked cigarettes in the past 30 days, as based on self-report.)
• Reads and speaks English.
• Has the cognitive capacity to complete study questionnaires.
• Willing and able to provide informed consent according to institutional guidelines.

PARENT EXCLUSION CRITERIA:

• In crisis or distress or have another disabling condition that would preclude participation as determined by consultation with patient's primary care physician and/or social worker prior to study enrollment.