Pain in Patients With Cystic Fibrosis in Rouen University Hospital

Patients seen for routine planned visits complete a self-administered retrospective questionnaire about pain during the last 3 months, and a prospective diary during the two weeks following the visit.

Primary evaluation criteria :

Intensity and frequency of pain are evaluated with the prospective diary.

• The pain intensity is assessed by validated scales adapted to the patient's age (scale ranging from 0 to 10).

0 to 6 years : numerical rating scale assessed by the parents. 4 to 7 years : Faces Pain Scale Revised. Children 6 years and older, adolescents and adults: numerical rating scale self-reported

• The pain frequency is completed twice a day (morning and evening) on the prospective pain diary.

Secondary evaluation criteria

• The disease severity, estimated using recent forced expiratory volume in one second (FEV1) (best measurement of the year before bronchodilator, collected in the patient's medical record)
• Pain locations, pharmacological or nonpharmacological treatment and procedural pain are evaluated using the diary and the questionnaire.
• Demographic data and characteristics of cystic fibrosis are collected using the medical file.

Inclusion criteria

• Children and adults followed at the cystic fibrosis center of Rouen University Hospital, Normandy, France.
• Seen for routine planned visits.
• Having expressed their non-opposition or whose non-opposition was expressed by the parents or legal representatives for minors

Exclusion criteria

• Patients seen for an acute episode or exacerbation outside of routine planned visits or patient hospitalized.
• Major patient under legal protection.
• Major patient having problems understanding the oral and written French language or child whose parents or legal representatives have problems understanding the oral and written French language.