Skip to main content
OpenTrials
Completed

NCT Number: NCT04525742

COVID-19 Pandemic and Parents of Disabled Children

Pandemic period could affect the disabled children's rehabilitation and follow-up negatively because of preventive measures and this could create adverse results on their parents.

In this research, it is aimed to determine the positive and negative effects of pandemic on parents and disabled children and to provide an insight for future solutions.

Completed

Looking for future studies?

Notify Me

Key information

Conditions

COVID-19 Brain Damage, Chronic Brain Diseases Central Nervous System Diseases Cerebral Palsy Congenital, Hereditary, and Neonatal Diseases and Abnormalities Coronaviridae Infections Coronavirus Infections Disabilities Multiple Genetic Diseases, Inborn Infections Lung Diseases Muscular Diseases Muscular Disorders, Atrophic Muscular Dystrophies Musculoskeletal Diseases Nervous System Diseases Neuromuscular Diseases Nidovirales Infections Pneumonia Pneumonia, Viral RNA Virus Infections Respiratory Tract Diseases Respiratory Tract Infections Virus Diseases

Age range

18 year–65 year

Sex eligibility

All sexes

Study type

Interventional

Phase

Not applicable

Primary location

Health Science University Gaziosmanpasa Training and Research Hospital

Istanbul, Gaziosmanpasa, 34255, Turkey (Türkiye)

About this study

To determine the effect of COVID-19 pandemic and the possible difficulties experienced by the parents of disabled children, a questionnaire was prepared. It takes approximately 10-15 minutes to complete the survey. Questionnaire is loaded to qualtrics program and sent to the families by e-mail or social media accounts.

Who can participate

Healthy volunteers accepted: Yes

Only the study team can determine whether someone qualifies for participation.

Inclusion criteria

  • Having disabled child/children
  • Having ability and facility to use internet
  • Having ability to read and write
  • Having enough cognitive capacity to answer the questionnaire
  • To accept to participate the research

Exclusion criteria

  • Not having disabled child/children
  • Not having ability and facility to use internet
  • Not having ability to read and write
  • Not having enough cognitive capacity to answer the questionnaire
  • Not to accept to participate the research

Treatment and study plan

Difficulties lived by disabled children's parents in the period of COVID-19 pandemic

Other

It will be a cross sectional study to obtain the information on difficulties lived by disabled children's parents during recent pandemic period

Primary outcomes

  1. A questionnaire that we created will be used to determine the difficulties experienced by disabled children's parents during Covid 19 pandemic related to their medical follow-up

    Time frame: 4 weeks

    Difficulties related to rehabilitation facilities, other medical conditions or ortosis could increase because of Covid 19 pandemic unique conditions

Secondary outcomes

  1. The Fear of COVID-19 Scale

    Time frame: 4 weeks

    The Fear of COVID-19 Scale, a seven-item scale, has robust psychometric properties. It is reliable and valid in assessing fear of COVID-19 among the general population and will also be useful in allaying COVID-19 fears among individuals. Score is minimum 7 pointts and maximum 35 points.

Sponsors and collaborators

Lead sponsor

Gaziosmanpasa Research and Education Hospital

Other Gov

Registry information

Official study title

COVID-19 Pandemic From the Perspective of Parents of Disabled Children

Important dates

Study start
2020
Primary completion
2020
Study completion
2020
First posted
Aug 25, 2020
Registry last updated
Nov 3, 2020

OpenTrials presents study information sourced from ClinicalTrials.gov. The official registry record should be consulted for the latest information.

View the official ClinicalTrials.gov record (opens in a new tab)

This listing is for discovery and informational purposes only. It is not medical advice, does not guarantee that a study is recruiting, and does not determine eligibility. Contact the study team and a qualified healthcare professional when considering participation.

Related clinical trials

Published trials that share one or more normalized conditions with this study.