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Completed

NCT Number: NCT06335368

Assessment of Nutritional and Growth Status in Rett Syndrome Patients

Children with Rett syndrome are in a period of rapid growth, and proper and appropriate nutritional support is very important. Past foreign research papers it has been pointed out that most of these patients have feeding difficulties, dysphagia, and digestive tract abnormalities, are often constipated, and may suffer from osteoporosis and other problems. Lack of proper nutritional support will seriously affect their growth, development and health. in view of There is a lack of relevant research in China, so the investigators would like to use this research to explore the nutritional, growth and postural status of Rett's disease patients, as the reference direction and goal of dietary adjustment and nutritional support for patients, and establish dietary and nutritional strategies for sick children in Taiwan.

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Key information

Conditions

Rett Syndrome Congenital, Hereditary, and Neonatal Diseases and Abnormalities Genetic Diseases, Inborn Genetic Diseases, X-Linked Heredodegenerative Disorders, Nervous System Intellectual Disability Nervous System Diseases Neurobehavioral Manifestations Neurologic Disorder Neurologic Manifestations X-Linked Intellectual Disability

Age range

1 year–18 year

Sex eligibility

All sexes

Study type

Observational

Who can participate

Only the study team can determine whether someone qualifies for participation.

Inclusion criteria

  • Rett syndrome patient.

Exclusion criteria

  • Not Rett syndrome patient.

Treatment and study plan

Nutrition and Growth Status

Other

Nutrition and Growth Status

Primary outcomes

  1. gender, age , disease history checklist

    Time frame: 1 year

  2. Change in Body height

    Time frame: 1 year

    The growth status of the case will be assessed

  3. Change in Body weight

    Time frame: 1 year

    The growth status of the case will be assessed

  4. Change in knee height

    Time frame: 1 year

    The growth status of the case will be assessed

  5. Change in arms height

    Time frame: 1 year

    The growth status of the case will be assessed and growth curve

  6. Change in waist

    Time frame: 1 year

    The growth status of the case will be assessed

  7. Change in hip circumferences

    Time frame: 1 year

    The growth status of the case will be assessed

Sponsors and collaborators

Lead sponsor

National Taiwan University Hospital

Other

Registry information

Important dates

Study start
2016
Primary completion
2016
Study completion
2020
First posted
Mar 28, 2024
Registry last updated
Mar 28, 2024

OpenTrials presents study information sourced from ClinicalTrials.gov. The official registry record should be consulted for the latest information.

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This listing is for discovery and informational purposes only. It is not medical advice, does not guarantee that a study is recruiting, and does not determine eligibility. Contact the study team and a qualified healthcare professional when considering participation.

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