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OpenTrials
Completed

NCT Number: NCT05035225

A National Survey on the Prevalence and Impact of Multiple Pharmacy Use in Specialty Pharmacy

Specialty medications often have dispensing restrictions which can be dictated by manufacturer limited distribution strategies, narrow insurance networks, or a combination of both. Unfortunately, this may result in patients being required to use 2 or more pharmacies to fill their prescription medications; this is referred to as multiple pharmacy use (MPU). The investigators' plan is to administer a survey to patients who have been prescribed one or more specialty medications to evaluate the prevalence of MPU in this population as well as to investigate patients' attitudes about MPU and potential factors increasing the likelihood of MPU

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Key information

Conditions

Health Services Accessibility

Age range

18 year and older

Sex eligibility

All sexes

Study type

Interventional

Phase

Not applicable

Primary location

Johns Hopkins Hospital

Baltimore, Maryland, 21287, United States

About this study

The investigators will identify patients from participating member sites via a review of prescribing records for specific specialty medications. Patients will be contacted via telephone to explain the purpose and risk of the study. Consented patients will then be asked a series of 11 questions about their attitudes and experience with taking and obtaining their specialty medication(s). Additional demographic and clinical information about patients will be collected via chart review.

Who can participate

Healthy volunteers accepted: Yes

Only the study team can determine whether someone qualifies for participation.

Inclusion criteria

  • Subjects 18 years of age or older
  • English-speakers
  • An active patient of a performance institution and ability to provide informed consent to participate with the survey
  • Electronically prescribed at least one specialty medication by a performance site provider, which can be either a new or renewed order, within the last 3 months

Exclusion criteria

  • Subjects less than 18 years of age
  • Non-English speakers
  • Patients that cannot or are unwilling to provide consent
  • Patients who have not had a new or renewed specialty medication prescription order placed electronically within the last 3 months

Treatment and study plan

Survey

Other

Multiple Pharmacy Use Survey

Primary outcomes

  1. Percentage of Patients using Multiple Pharmacies

    Time frame: Within one year of study initiation

    Of all patients consented, the percentage of patients using more than one pharmacy to obtain their medications

Secondary outcomes

  1. Self-reported adherence and barriers

    Time frame: Within one year of study initiation

    Patient response to questions about having missed doses in the past month

  2. Method of obtaining medications

    Time frame: Within one year of study initiation

    Patient response to questions about distance from pharmacy and how prescriptions are primarily obtained

  3. Experience with obtaining and administering medications

    Time frame: Within one year of study initiation

    Patient response to questions about how easy it is for patients to obtain and administer medication

Sponsors and collaborators

Lead sponsor

Johns Hopkins University

Other

Collaborators

  • The Cleveland Clinic
  • University of California, Los Angeles
  • University of Illinois at Chicago
  • University of Washington

Registry information

Important dates

Study start
2023
Primary completion
2025
Study completion
2025
First posted
Sep 5, 2021
Registry last updated
Jul 23, 2025

OpenTrials presents study information sourced from ClinicalTrials.gov. The official registry record should be consulted for the latest information.

View the official ClinicalTrials.gov record (opens in a new tab)

This listing is for discovery and informational purposes only. It is not medical advice, does not guarantee that a study is recruiting, and does not determine eligibility. Contact the study team and a qualified healthcare professional when considering participation.

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