Hemoglobin Disorders in Egypt: Sickle Cell Disease Ain Shams University Institutional Registry

This is a retrospective descriptive study to create an institutional registry that will continue as a prospective follow-up non-intervention study that will be carried out at Hematology Oncology and BMT Department, Children's Hospital, Ain-Shams University, Cairo, Egypt.

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Key information

Conditions

Sickle Cell Disease (SCD) Anemia Anemia, Hemolytic Anemia, Hemolytic, Congenital Anemia, Sickle Cell Congenital, Hereditary, and Neonatal Diseases and Abnormalities Genetic Diseases, Inborn Hematologic Diseases Hemic and Lymphatic Diseases Hemoglobinopathies

Age range

Up to 39 year

Sex eligibility

All sexes

Study type

Observational

Primary location

Faculty of Medicine Ain Shams Research Institute- Clinical Research Center, Cairo, Egypt

Who can participate

Healthy volunteers accepted: No

Only the study team can determine whether someone qualifies for participation.

Inclusion criteria

children, adolescents and young adults with sickle cell disease

Exclusion criteria

other inherited anemia

Treatment and study plan

Primary outcomes

Institutional database

Time frame: 2 years

To create databases and institutional registry for managing the clinical data

Study contacts

Contact information is provided by the study sponsor or research team.

Dr. Fatma Ebeid Ebeid

CONTACT

[email protected]

+20 109 5569596

Sponsors and collaborators

Lead sponsor

Ain Shams University

Other

Registry information

Acronym: Egyptian SCD

Important dates

Study start: 2024
Primary completion: 2027
Study completion: 2027
First posted: Sep 2, 2026
Registry last updated: Sep 2, 2026

OpenTrials presents study information sourced from ClinicalTrials.gov. The official registry record should be consulted for the latest information.

View the official ClinicalTrials.gov record (opens in a new tab)

This listing is for discovery and informational purposes only. It is not medical advice, does not guarantee that a study is recruiting, and does not determine eligibility. Contact the study team and a qualified healthcare professional when considering participation.

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