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OpenTrials
Completed

NCT Number: NCT01610843

Worldwide Sarcoidosis Research Study

The aim of this study is to collect information about the clinical course and characteristics of sarcoidosis patients around the world through web-based surveys. Recruitment is directed at and driven by patients in the sarcoidosis community. This will allow the the investigators to study sarcoidosis patients across all demographic, geographic, and socioeconomic boundaries, not just patients seen at large research centers. The investigators believe this study can give investigators a broader and less biased view of sarcoidosis. The investigators would also like to collect genetic samples on this population to assess genetic variance in different phenotypes.

The information for the study would be provided through a web based survey system that can be accessed by patients or physicians of patients from any computer with Internet access. This system would collect clinical information in sufficient detail so that the phenotype of individual patients can be evaluated. Upon agreeing to participate in further research studies through the website, subjects will also have the opportunity to provide a DNA sample.

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Key information

Age range

18 year and older

Sex eligibility

All sexes

Study type

Observational

Primary location

University of Iowa

Iowa City, Iowa, 52242, United States

Who can participate

Healthy volunteers accepted: No

Only the study team can determine whether someone qualifies for participation.

Inclusion criteria

  • Diagnosis of Sarcoidosis
  • Access to a computer with Internet

Exclusion criteria

  • None

Treatment and study plan

Survey

Other

Longitudinal surveys

Primary outcomes

  1. Define and characterize sarcoidosis phenotypes and methods of care

    Time frame: Anticipated by 2017

    To give a broader and less biased view of sarcoidosis

Sponsors and collaborators

Lead sponsor

Alicia Gerke

Other

Collaborators

  • National Center for Research Resources (NCRR)

Registry information

Acronym: WISE

Important dates

Study start
2011
Primary completion
2025
Study completion
2025
First posted
Jun 4, 2012
Registry last updated
Dec 22, 2025

OpenTrials presents study information sourced from ClinicalTrials.gov. The official registry record should be consulted for the latest information.

View the official ClinicalTrials.gov record (opens in a new tab)

This listing is for discovery and informational purposes only. It is not medical advice, does not guarantee that a study is recruiting, and does not determine eligibility. Contact the study team and a qualified healthcare professional when considering participation.

Published trials that share one or more normalized conditions with this study.