Understanding Family Refusal

The investigators plan a secondary data analysis of an existing dataset to examine how individual decision-making differs from family decision-making in organ donation.

Completed

Looking for future studies?

Notify Me

Key information

Conditions

Brain Death Brain Diseases Central Nervous System Diseases Coma Consciousness Disorders Death Female Urogenital Diseases Female Urogenital Diseases and Pregnancy Complications Kidney Diseases Male Urogenital Diseases Nervous System Diseases Neurobehavioral Manifestations Neurologic Manifestations Pathologic Processes Pathological Conditions, Signs and Symptoms Renal Failure Renal Insufficiency Unconsciousness Urogenital Diseases Urologic Diseases

Age range

21 year and older

Sex eligibility

Female

Study type

Observational

Who can participate

Healthy volunteers accepted: Yes

Only the study team can determine whether someone qualifies for participation.

Inclusion criteria

Citizens or permanent residents of Singapore
Above 21

Exclusion criteria

Below 21

Treatment and study plan

Health sciences survey

Other

Large scale demographic survey evaluating attitudes of population towards organ donation for the self vs. family

Primary outcomes

Willingness to donate

Time frame: Single measurement (time of taking the survey)

Participants indicated their willingness to donate their own organs and those of a close family member

Secondary outcomes

Confidence in family decision-making

Time frame: Single measurement (time of taking the survey)

Participants rated how confident they were that - upon their family member's death - they would respect their family member's views regarding donation rated using 5-point scales anchored on one end with 1="Not confident at all" and 5="Absolutely confident").

Sponsors and collaborators

Lead sponsor

Yale-NUS College

Other

Collaborators

Singapore General Hospital

Registry information

Official study title

Exploring Family vs. Individual Decision-making in Organ Donation

Important dates

Study start: 2016
Primary completion: 2019
Study completion: 2019
First posted: Mar 11, 2020
Registry last updated: Mar 11, 2020

OpenTrials presents study information sourced from ClinicalTrials.gov. The official registry record should be consulted for the latest information.

View the official ClinicalTrials.gov record (opens in a new tab)

This listing is for discovery and informational purposes only. It is not medical advice, does not guarantee that a study is recruiting, and does not determine eligibility. Contact the study team and a qualified healthcare professional when considering participation.

Published trials that share one or more normalized conditions with this study.

Completed