Transition From Hospital to Home in Solid Organ Transplant (SOT)

The aim of this study is to determine the influences of discharge teaching and care coordination on how ready a parent is to take their child home from the hospital after a solid organ (kidney, heart and liver) transplant. This study will also look into how the parent handles coping, utilization of healthcare resources, and parent adjustment 3 weeks after discharge from the hospital.

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Key information

Conditions

Solid Organ Transplant

Age range

Up to 18 year

Sex eligibility

All sexes

Study type

Observational

Primary location

Children's Memorial Hospital, Chicago, Illinois, United States

About this study

Parents of children that have received a heart, kidney or liver transplant will be asked to participate in this protocol. Involvement in this study involves completion of questionnaires prior to the child being discharged from the hospital. Three weeks after discharge, there will also be a follow-up phone call to complete more questionnaires.

Readiness for hospital discharge is a under-investigated topic in pediatric solid organ transplant patients, despite the increasing number of pediatric patients undergoing transplant surgery. Results from this study will be used to develop an intervention program to promote readiness for hospital discharge in parents of children who receive a solid organ transplant.

Who can participate

Healthy volunteers accepted: No

Only the study team can determine whether someone qualifies for participation.

Inclusion criteria

parents of children who have undergo a heart, kidney, or liver transplant
English Speaking
Parents are 18 years of age or older

Exclusion criteria

parents with significant cognitive or communication impairment that would not allow them to complete the questionnaires
parent whose child is receiving their 2nd or 3rd organ transplant

Treatment and study plan

Primary outcomes

Determine the influences of care coordination and discharge teaching on readiness for discharge in solid organ transplant recipients

Time frame: 2 years

Secondary outcomes

Determine the relationship of parent readiness for hospital discharge with coping, utilization of healthcare resources, medication adherence, and parent adjustment following hospital discharge

Time frame: 2 years

Sponsors and collaborators

Lead sponsor

Medical College of Wisconsin

Other

Registry information

Official study title

The Transition From Hospital to Home in Parents of Solid Organ Transplant Recipients

Important dates

Study start: 2009
Primary completion: 2010
Study completion: 2011
First posted: May 22, 2009
Registry last updated: Nov 10, 2011

OpenTrials presents study information sourced from ClinicalTrials.gov. The official registry record should be consulted for the latest information.

View the official ClinicalTrials.gov record (opens in a new tab)

This listing is for discovery and informational purposes only. It is not medical advice, does not guarantee that a study is recruiting, and does not determine eligibility. Contact the study team and a qualified healthcare professional when considering participation.

Published trials that share one or more normalized conditions with this study.

Completed