The Living Experience of Hong Kong Chinese Adolescents With CHD.

This study aims to explore the impacts of CHD and its limitations on adolescents and the living experience of adolescents living with CHD.

Hong Kong Chinese adolescents with CHD are having reduced psychological well-being and quality of life than their healthy counterparts. Qualitative study is therefore needed to explore how CHD may impact on the adolescents' psychological well-being and quality of life.

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Key information

Conditions

Congenital Heart Disease Adolescent Behavior Cardiovascular Abnormalities Cardiovascular Diseases Chinese Congenital Abnormalities Congenital, Hereditary, and Neonatal Diseases and Abnormalities Heart Defects, Congenital Heart Diseases Personal Satisfaction Psychological Well-Being Quality of Life

Age range

12 year–18 year

Sex eligibility

All sexes

Study type

Observational

Primary location

University of Hong Kong

Hong Kong

About this study

A qualitative study was adopted. Purposive sampling of 30 adolescents with CHD were done. Thematic analysis was used for data analysis. The participants unfold negative impacts of CHD and its treatments, and the challenges they were facing with their relationship with others.

Who can participate

Healthy volunteers accepted: No

Only the study team can determine whether someone qualifies for participation.

Inclusion criteria

Hong Kong Chinese adolescents
aged 12 to 18
able to read and write Chinese
attending outpatient clinic of Department of Pediatric Cardiology

Exclusion criteria

adolescents with non-structural heart disease
with developmental delay or comorbid medical conditions

Treatment and study plan

Primary outcomes

living experience of adolescents with CHD

Time frame: 1 day

Participants were asked to describe their living experiences with CHD and how has CHD affected their quality of life and psychological well-being during the semi-structure interview.

Sponsors and collaborators

Lead sponsor

The University of Hong Kong

Other

Registry information

Important dates

Study start: 2017
Primary completion: 2018
Study completion: 2018
First posted: Sep 19, 2018
Registry last updated: Sep 19, 2018

OpenTrials presents study information sourced from ClinicalTrials.gov. The official registry record should be consulted for the latest information.

View the official ClinicalTrials.gov record (opens in a new tab)

This listing is for discovery and informational purposes only. It is not medical advice, does not guarantee that a study is recruiting, and does not determine eligibility. Contact the study team and a qualified healthcare professional when considering participation.

Published trials that share one or more normalized conditions with this study.

Completed