Massachusetts general Hospital
Boston, Massachusetts, 02215, United States
NCT Number: NCT03040102
The purpose of this research study is to compare two ways to educate patients with cancer and their caregivers about hospice care services
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Notify Me18 year and older
All sexes
Interventional
Not applicable
Boston, Massachusetts, 02215, United States
The purpose of this research study is to compare two ways to educate patients with cancer and their caregivers about hospice care services - a video educational tool or a verbal narrative. The study will assess the effect of these methods on patients' and caregivers' knowledge about hospice care, as well as their perceptions and preferences for this service.
Using this research, the investigators hope to find out the best way to help patients and their loved ones better understand hospice care. The educational methods used in this study (the video educational tool or verbal narrative) are meant to serve as an introduction to hospice care. Further details about hospice should be discussed directly with your care team.
This study will enroll 150 patients with advanced cancer and up to 150 of their caregivers in this randomized clinical trial. The study will use questionnaires to measure the participant and the caregivers' knowledge of hospice care, as well as your perceptions and preferences for these services. Study assessments will be completed before and after watching the video or hearing the verbal narrative in the hospital.
Healthy volunteers accepted: Yes
Only the study team can determine whether someone qualifies for participation.
Inclusion criteria
Patients Eligibility Criteria:
Caregivers Eligibility Criteria:
Exclusion criteria
Patients Exclusion Criteria:
-Significant uncontrolled psychiatric disorder (psychotic disorder, bipolar disorder, major depression) or other co-morbid disease (dementia, cognitive impairment), which the treating clinician believes prohibits the ability to participate in study procedures
it's a 6 minute video regarding hospice care
Standard of Care practice is used
Time frame: immediately after the video intervention or verbal narrative
We will ask patients whether they would prefer to receive hospice care at the end of life (yes vs. no)
Time frame: immediately after the video intervention or verbal narrative
we will assess knowledge about hospice using 10 knowledge questions
Time frame: immediately after the video intervention or verbal narrative
we will assess perception of hospice using the Hospice Perception Questionnaire
Time frame: 1 year after study completion
We will assess patient hospice utilization and length of stay in hospice
Time frame: immediately after the video intervention or verbal narrative
we will assess caregiver's preference for their loved one using hospice (yes vs. no)
Time frame: immediately after the video intervention or verbal narrative
we will assess knowledge about hospice using 10 knowledge questions
Time frame: immediately after the video intervention or verbal narrative
we will assess perception of hospice using the Hospice Perception Questionnaire
Time frame: 1 year after study completion
We will use 9 items from the FAMCARE to assess caregivers' satisfaction with patient's end of life care
Massachusetts General Hospital
Other
OpenTrials presents study information sourced from ClinicalTrials.gov. The official registry record should be consulted for the latest information.
View the official ClinicalTrials.gov record (opens in a new tab)This listing is for discovery and informational purposes only. It is not medical advice, does not guarantee that a study is recruiting, and does not determine eligibility. Contact the study team and a qualified healthcare professional when considering participation.
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