Recruiting

NCT Number: NCT07344012

Parental Project Amongst 93 Patients With Turner Syndrome

The aim is to describe the parental project, spontaneous pregnancies and pregnancies resulting from egg donation or adoption in women diagnosed with Turner syndrome treated at Strasbourg University Hospitals.

Recruiting

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Key information

Conditions

Turner Syndrome Cardiovascular Abnormalities Cardiovascular Diseases Chromosome Disorders Congenital Abnormalities Congenital, Hereditary, and Neonatal Diseases and Abnormalities Disorders of Sex Development Endocrine System Diseases Female Urogenital Diseases Female Urogenital Diseases and Pregnancy Complications Genetic Diseases, Inborn Gonadal Disorders Gonadal Dysgenesis Heart Defects, Congenital Heart Diseases Male Urogenital Diseases Sex Chromosome Disorders Sex Chromosome Disorders of Sex Development Urogenital Abnormalities Urogenital Diseases

Age range

18 year–40 year

Sex eligibility

Female

Study type

Observational

Primary location

Service d'Endocrinologie, Diabétologie, Nutrition - CHU de Strasbourg - France

Strasbourg, 67091, France

Location status: Recruiting

Location contact

Nathalie JEANDIDIE, MD

SUB_INVESTIGATOR

Olivier PIRRELLO, MD

SUB_INVESTIGATOR

Thibault BAHOUGNE, MD

CONTACT

[email protected]

33 3.88.12.78.99

Thibault BAHOUGNE, MD

PRINCIPAL_INVESTIGATOR

Who can participate

Healthy volunteers accepted: No

Only the study team can determine whether someone qualifies for participation.

Inclusion criteria

Adult women (≥18 years old)
Treated at Strasbourg University Hospitals for a parental project during the period from January 1, 2009, to December 31, 2019
Having presented with Turner syndrome confirmed by karyotyping
Having expressed a desire to become a parent during consultation

Exclusion criteria

No desire to become a parent or missing data
Missing data

Treatment and study plan

Primary outcomes

Success rate of the parental project among patients with Turner syndrome who expressed a desire to become parents

Time frame: Up to 24 months

Success rate of the parental project among patients with Turner syndrome who expressed a desire to become parents:

Example:

If 10 women try to have a child and 3 succeed, the success rate is 30%.

Study contacts

Contact information is provided by the study sponsor or research team.

Thibault BAHOUGNE, MD

CONTACT

[email protected]

33 3.88.12.78.99

Sponsors and collaborators

Lead sponsor

University Hospital, Strasbourg, France

Other

Registry information

Acronym: TURNER

Important dates

Study start: 2025
Primary completion: 2027
Study completion: 2027
First posted: Jan 15, 2026
Registry last updated: Jan 15, 2026

OpenTrials presents study information sourced from ClinicalTrials.gov. The official registry record should be consulted for the latest information.

View the official ClinicalTrials.gov record (opens in a new tab)

This listing is for discovery and informational purposes only. It is not medical advice, does not guarantee that a study is recruiting, and does not determine eligibility. Contact the study team and a qualified healthcare professional when considering participation.

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Recruiting