Health Literacy in Adults With Congenital Heart Disease

Currently, both oral and written health education make certain assumptions about the health literacy of patients and their parents. The prevalence of health literacy issues is unknown in the adult congenital heart disease (CHD) population. Having a better understanding of a patient's and/or their parents' health literacy will help us develop appropriate education and teaching tools to meet the patient's and their parents' needs.

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Key information

Conditions

Congenital Heart Disease Cardiovascular Abnormalities Cardiovascular Diseases Congenital Abnormalities Congenital, Hereditary, and Neonatal Diseases and Abnormalities Heart Defects, Congenital Heart Diseases

Age range

18 year and older

Sex eligibility

All sexes

Study type

Observational

Primary location

Stanford Hospital Adult Congenital Heart Clinic

Palo Alto, California, 94304, United States

About this study

When providers speak with patients regarding their congenital heart disease, they currently have no assessment of the patient's basic health literacy. If providers are aware of the level of their patients' health literacy, they will be better equipped to provide care on the level the patient best understands.

Who can participate

Healthy volunteers accepted: No

Only the study team can determine whether someone qualifies for participation.

Inclusion criteria

Males or females 18 years of age and older with congenital heart disease.

Exclusion criteria

Developmentally delayed subjects.
Any subject not meeting inclusion criteria.

Treatment and study plan

Primary outcomes

Assess Literacy

Time frame: The final 3 months will be used for data analysis and the presentation/manuscript preparation.

Assess health literacy in human patients ages 18 to 65 with congenital heart disease through data collected from health literacy questionnaire.

Sponsors and collaborators

Lead sponsor

Stanford University

Other

Registry information

Official study title

Assessment of Health Literacy in Adults With Congenital Heart Disease

Important dates

Study start: 2015
Primary completion: 2021
Study completion: 2021
First posted: May 30, 2017
Registry last updated: May 12, 2021

OpenTrials presents study information sourced from ClinicalTrials.gov. The official registry record should be consulted for the latest information.

View the official ClinicalTrials.gov record (opens in a new tab)

This listing is for discovery and informational purposes only. It is not medical advice, does not guarantee that a study is recruiting, and does not determine eligibility. Contact the study team and a qualified healthcare professional when considering participation.

Published trials that share one or more normalized conditions with this study.

Completed