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NCT Number: NCT00230685

Case Notes Review on Patients With Hereditary Haemorrhagic Telangiectasia

This observational study is for individuals with Hereditary haemorrhagic telangiectasia and pulmonary arteriovenous malformations that are reviewed at the Hammersmith Hospital, London.

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Key information

Conditions

Telangiectasia, Hereditary Hemorrhagic Cardiovascular Abnormalities Cardiovascular Diseases Congenital Abnormalities Congenital, Hereditary, and Neonatal Diseases and Abnormalities Hematologic Diseases Hemic and Lymphatic Diseases Hemorrhagic Disorders Hemostatic Disorders Telangiectasis Vascular Diseases Vascular Malformations

Sex eligibility

All sexes

Study type

Observational

Primary location

Respiratory Medicine, Hammersmith Hospital

London, W12 0NN, United Kingdom

Location status: Recruiting

Location contact

Claire L Shovlin

CONTACT

[email protected]

Claire L Shovlin

PRINCIPAL_INVESTIGATOR

About this study

The Hammersmith Hospital provides a clinical service for patients with Hereditary haemorrhagic telangiectasia and pulmonary arteriovenous malformations that is unique in the United Kingdom. Measurements obtained as part of standard clinical practice that has evolved since 1985 allow us to assess whether particular groups of individuals that we see are more prone to recognised complications such as strokes, brain abscesses, pregnancy related complications or pulmonary hypertension. We hypothesise that certain clinical characteristics will predict the susceptibility of individuals to particular complications.

Who can participate

Healthy volunteers accepted: No

Only the study team can determine whether someone qualifies for participation.

Inclusion criteria

  • Patients attending Hammersmith Hospital

Exclusion criteria

  • None

Treatment and study plan

Primary outcomes

  1. Stroke

    Time frame: Prospective

    Ischaemic stroke attributable to PAVMs

  2. Venous thromboemboli (VTE)

    Time frame: Prospective

    VTE of any origin

Study contacts

Contact information is provided by the study sponsor or research team.

Claire L Shovlin

CONTACT

[email protected]

0208 383 1000

Sponsors and collaborators

Lead sponsor

Imperial College London

Other

Collaborators

  • The Margaret Hayton HHT Fund

Registry information

Official study title

Hammersmith Hospital Patients With Pulmonary Arteriovenous Malformations (PAVMs) and Hereditary Haemorrhagic Telangiectasia

Important dates

Study start
2000
Primary completion
2028
Study completion
2028
First posted
Oct 3, 2005
Registry last updated
Sep 28, 2023

OpenTrials presents study information sourced from ClinicalTrials.gov. The official registry record should be consulted for the latest information.

View the official ClinicalTrials.gov record (opens in a new tab)

This listing is for discovery and informational purposes only. It is not medical advice, does not guarantee that a study is recruiting, and does not determine eligibility. Contact the study team and a qualified healthcare professional when considering participation.

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