Anticipated Patient and Caregiver Burden

Inclusion criteria

(patient) :

• Patient is at least 18 years of age.
• Patient having given informed consent
• Patient with ALS who has already had at least two multidisciplinary assessments in the ALS center in Marseille with an evaluation by the clinical psychologist.
• Patient with a motor handicap of grade 3 to 5 on the Rankin score
• Patient with a primary family caregiver at home (spouse, child) willing to participate in the study
• Patient who is a beneficiary of or affiliated with a social security plan

Inclusion criteria

(caregiver) :

• Adult subject at least 18 years of age.
• Subject who has given informed consent.
• Primary family caregiver of a patient with ALS who agrees to participate in the study
• Caregiver present during hospital visits.

Exclusion criteria

(patient):

• Patients with a serious and unstable associated disease, cardiac, oncological, hepatic or renal, psychiatric (schizophrenia, bipolar)
• Autonomous patient, who does not need the help of a third party for the basic gestures of daily life (Rankin 0 to 2)
• Patient living in an institution or alone at home
• Patient with cognitive impairment that interferes with activities of daily living
• Patients with marked emotional lability (spasmodic crying) due to ALS
• Patients who have had a recent diagnosis of their disease (less than 6 months)
• Patients who are unaware of the severity of their condition
• Any condition that in the opinion of the investigator or psychologist would not be compatible with the study.

Exclusion criteria

(caregiver):

• Subjects with severe and unstable cardiac, oncological, hepatic, renal or other illnesses.
• Subject with a history of psychiatric illness