Recruiting

NCT Number: NCT07357558

A Qualitative Study Investigating the Lived Experiences and Impact of Reproductive Issues in Adults With Primary Ciliary Dyskinesia

Study involving undertaking research interviews with adults who have primary ciliary dyskinesia in the UK about their views and experiences of fertility, pregnancy and parenthood

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Key information

Conditions

Primary Ciliary Dyskinesia (PCD) Abnormalities, Multiple Ciliary Motility Disorders Ciliopathies Congenital Abnormalities Congenital, Hereditary, and Neonatal Diseases and Abnormalities Genetic Diseases, Inborn Otorhinolaryngologic Diseases Respiratory Tract Diseases

Age range

18 year and older

Sex eligibility

All sexes

Study type

Observational

Primary location

University Hospitals Southampton NHS Trust

Southampton, United Kingdom

Location status: Recruiting

Location contact

Lydia Newman

CONTACT

[email protected]

Ying Cheong

CONTACT

[email protected]

Who can participate

Healthy volunteers accepted: No

Only the study team can determine whether someone qualifies for participation.

Inclusion criteria

Lives in United Kingdom
'likely' or 'confirmed' diagnosis of PCD
able and willing to sign the consent form

Exclusion criteria

unwilling to participate in the study
not meeting inclusion criteria

Treatment and study plan

Interview only

Other

No intervention

Primary outcomes

Qualitative description of views and experiences of participants

Time frame: Explored during study interview (day 1)

Explored during study interview

Study contacts

Contact information is provided by the study sponsor or research team.

Lydia Newman

CONTACT

[email protected]

02381206033

Sponsors and collaborators

Lead sponsor

University Hospital Southampton NHS Foundation Trust

Other

Collaborators

University of Southampton

Registry information

Important dates

Study start: 2025
Primary completion: 2026
Study completion: 2026
First posted: Jan 22, 2026
Registry last updated: Jan 22, 2026

OpenTrials presents study information sourced from ClinicalTrials.gov. The official registry record should be consulted for the latest information.

View the official ClinicalTrials.gov record (opens in a new tab)

This listing is for discovery and informational purposes only. It is not medical advice, does not guarantee that a study is recruiting, and does not determine eligibility. Contact the study team and a qualified healthcare professional when considering participation.

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