Recruiting Rare Disease Patient Registry & Natural History Study - Coordination of Rare Diseases at Sanford NCT01793168 Conditions 1p36 Deletion Syndrome, 3-Methylglutaconic Aciduria, Type V, 4p Deletion Syndrome, Non-Wolf-Hirschhorn Syndrome, +698 more Locations Sanford Health — Sioux Falls, South Dakota, United States Online Patient Enrollment System — Sydney, Australia View Trial Details
Completed CZI Rare As One: Co-designing an App and Wearable Based Compass for Rare Diseases NCT06907953 Conditions COVID-19, Chronic Disease, Coronaviridae Infections, +32 more Locations 4YouandMe — New York, United States View Trial Details
