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GNE-Myopathy Disease Monitoring Program (GNEM-DMP): A Registry and Prospective Observational Natural History Study to Assess GNE Myopathy or Hereditary Inclusion Body Myopathy (HIBM)

NCT01784679

Conditions
Disease Attributes, Distal Myopathy With Rimmed Vacuoles (DMRV), Distal myopathy, Nonaka type, +7 more
Locations
  • University of California, Irvine Irvine, California, United States
  • Bulgarian Neuromuscular Disease Association Sofia, Bulgaria
  • McMaster University Hamilton, Ontario, Canada
  • Association Institut de Myologie Paris, France
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