Recruiting Characterization of Inclusion Body Myopathy Associated With Paget's Disease of Bone and Frontotemporal Dementia (IBMPFD) NCT01353430 Conditions Bone Diseases, Brain Diseases, Central Nervous System Diseases, +19 more Locations University of California, Irvine — Irvine, California, United States View Trial Details
Recruiting Rare Disease Patient Registry & Natural History Study - Coordination of Rare Diseases at Sanford NCT01793168 Conditions 1p36 Deletion Syndrome, 3-Methylglutaconic Aciduria, Type V, 4p Deletion Syndrome, Non-Wolf-Hirschhorn Syndrome, +698 more Locations Sanford Health — Sioux Falls, South Dakota, United States Online Patient Enrollment System — Sydney, Australia View Trial Details
Completed Natural History Study of Patients With VCP-related Disease NCT04823143 Conditions IBMPFD, Inclusion Body Myopathy With Early-Onset Paget Disease And Frontotemporal Dementia Locations Nationwide Children's Hospital — Columbus, Ohio, United States View Trial Details
Completed Voices Of Individuals: Challenges and Experiences Of bvFTD NCT04060082 Conditions Brain Diseases, Central Nervous System Diseases, Dementia, +16 more Locations Johns Hopkins Medical Institution — Baltimore, Maryland, United States National Institutes of Health (NIH) — Bethesda, Maryland, United States University of Pennsylvania (Penn Frontotemporal Degeneration Center) — Philadelphia, Pennsylvania, United States View Trial Details
