Skip to main content
OpenTrials
Completed

NCT Number: NCT01351467

Web-based Genetic Research on Parkinson's Disease

The purpose of this study is to examine how genes and environment affect risk for Parkinson's disease.

Completed

Looking for future studies?

Notify Me

Key information

Conditions

Parkinson's Disease Basal Ganglia Diseases Brain Diseases Central Nervous System Diseases Movement Disorders Nervous System Diseases Neurodegenerative Diseases Parkinson Disease Parkinsonian Disorders Synucleinopathies

Age range

18 year and older

Sex eligibility

All sexes

Study type

Observational

Primary location

Www.23Andme.Com/Pd

Mountain View, California, 94043, United States

About this study

23andMe has created a web-based Parkinson's research initiative to understand the genetic associations found between Parkinson's patients' DNA and their disease. To learn more, visit: https://www.23andme.com/pd/. You can participate in this research initiative without leaving home. If you are eligible to participate, we will send you an in-home 23andMe DNA kit at no cost. We will ask you short online surveys (15-20) about your Parkinson's journey, symptoms, and response to treatment. Enrollment is on-going and open to individuals who have been diagnosed with Parkinson's disease and are residents of the U.S. Participants receive access to ancestry information and uninterpreted genetic data. Participants will also receive regular updates on our research efforts and findings.

Who can participate

Healthy volunteers accepted: No

Only the study team can determine whether someone qualifies for participation.

Inclusion criteria

  • diagnosis of Parkinson's disease by a physician

Exclusion criteria

  • diagnoses other than Parkinson's, including:
  • progressive supranuclear palsy (PSP)
  • multiple system atrophy (MSA)
  • Shy-Drager syndrome
  • spinal cerebella ataxia (SCA)
  • atypical parkinsonism
  • parkinsonism due to medications, drug-induced parkinsonism
  • vascular parkinsonism
  • frontotemporal dementia with parkinsonism

Treatment and study plan

Primary outcomes

  1. Saliva DNA test and online surveys with questions about Parkinson's disease experience, symptoms and response to treatment

    Time frame: Intermittent surveys every 6 months for up to 24 months

    We want to learn how genes and environment could play role in Parkinson's disease risk and progression

Sponsors and collaborators

Lead sponsor

23andMe, Inc.

Industry

Collaborators

  • Michael J. Fox Foundation for Parkinson's Research
  • The Parkinson's Institute

Registry information

Official study title

Ongoing, Web-Based Genome-Wide Association Studies for Targeted Disease Initiatives

Important dates

Study start
2009
Primary completion
2021
Study completion
2021
First posted
May 11, 2011
Registry last updated
Nov 3, 2022

OpenTrials presents study information sourced from ClinicalTrials.gov. The official registry record should be consulted for the latest information.

View the official ClinicalTrials.gov record (opens in a new tab)

This listing is for discovery and informational purposes only. It is not medical advice, does not guarantee that a study is recruiting, and does not determine eligibility. Contact the study team and a qualified healthcare professional when considering participation.

Related clinical trials

Published trials that share one or more normalized conditions with this study.