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Recruiting

NCT Number: NCT07070726

UNTOLD Ovarian Cancer Unmet Needs Survey

The goal of this study is to comprehensively measure ongoing concerns and unmet needs of individuals living with ovarian cancer. To accomplish this, the UNderstanding The experience of Ovarian cancer - Life after Diagnosis (UNTOLD) study will be conducted using a mixed-methods approach. Ovarian cancer survivors will be enrolled to participate in UNTOLD to complete a one-time survey regarding their experiences. Up to 40 survivors will be subsequently identified to complete a follow-up interview. To ensure these sample sizes, along with a representative sample, a combined recruitment strategy will be employed using the California Cancer Registry (population-based) and recruitment through ovarian cancer advocacy groups.

Recruiting

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Key information

Conditions

Ovarian Cancer Adnexal Diseases Endocrine Gland Neoplasms Endocrine System Diseases Female Urogenital Diseases Female Urogenital Diseases and Pregnancy Complications Genital Diseases Genital Diseases, Female Genital Neoplasms, Female Gonadal Disorders Neoplasms Neoplasms by Site Ovarian Diseases Ovarian Neoplasms Urogenital Diseases Urogenital Neoplasms

Age range

18 year and older

Sex eligibility

Female

Study type

Observational

Primary location

Masonic Cancer Center

Minneapolis, Minnesota, 55455, United States

Location status: Recruiting

Location contact

Rachel Vogel, PhD

CONTACT

[email protected]

612-624-6928

Who can participate

Healthy volunteers accepted: No

Only the study team can determine whether someone qualifies for participation.

Inclusion criteria

  • Ability to read and write in English
  • Diagnosed with ovarian cancer (ovarian, primary peritoneal, fallopian tube)

Exclusion criteria

-

Treatment and study plan

Primary outcomes

  1. Supportive Care Needs

    Time frame: Day 1

    Composite Supportive Care Needs Survey - Short Form (SCNS-SF34) score minimum: 34, maximum: 170; continuous score; presented as mean and standard deviation.

Secondary outcomes

  1. Quality of Life - Average FACT general total score

    Time frame: Day 1

    FACT-General total score minimum 0, maximum 108; continuous score; presented as mean and standard deviation

Study contacts

Contact information is provided by the study sponsor or research team.

Rachel Vogel, PhD

CONTACT

[email protected]

612-624-6928

Sponsors and collaborators

Lead sponsor

Masonic Cancer Center, University of Minnesota

Other

Collaborators

  • Centers for Disease Control and Prevention

Registry information

Official study title

UNderstanding The Experience of Ovarian Cancer Life After Diagnosis (UNTOLD) Study

Important dates

Study start
2025
Primary completion
2027
Study completion
2029
First posted
Jul 17, 2025
Registry last updated
Jul 8, 2026

OpenTrials presents study information sourced from ClinicalTrials.gov. The official registry record should be consulted for the latest information.

View the official ClinicalTrials.gov record (opens in a new tab)

This listing is for discovery and informational purposes only. It is not medical advice, does not guarantee that a study is recruiting, and does not determine eligibility. Contact the study team and a qualified healthcare professional when considering participation.

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