The Relationship Between Parents' Fatigue and Quality of Life

Fatigue Impact Scale is a multidimensional scale that measures the physical, cognitive, and social effects of fatigue. It consists of 40 items divided into 10 cognitive, 10 physical, and 20 social subscales. Each question is scored on a five-point Likert scale from 0 (no problem) to 4 (extreme problem). The maximum score is 160.

The Fatigue Severity Scale is one of the most commonly used scales to assess fatigue. There are nine questions. Each question is scored on a seven-point Likert scale from one to seven. The mean of nine questions is the scale value.The minimum score is 1 and maximum score is 7. Higher scores indicate more severe fatigue. Although there is no recommendation, it is usually considered that fatigue severity above 4 points is significant.

Quality of Life in Autism Questionnaire-Parent Version is divided into 2 parts (A and B). Part A consists of 28 questions that assess parents' perceptions of their own life quality. Each question is scored on a five-point Likert scale from one (not at all) to five (very much). Part B assesses parents' perceptions of the severity of their child's autism-related difficulties with 20 questions. Each question is scored on a five-point Likert scale from one (not much of a problem for me) to five (very much of a problem for me). Higher scores indicate that a child's autism-related difficulties cause fewer problems for parents. The scale produces a score ranging from minimum 48 to maximum 240 score.

Nottingham Health Profile assesses the physical, emotional, and health problems perceived by a person. It consists of 6 different subcategories such as energy, pain, physical mobility, sleep, emotional reactions, and social isolation, with 38 items. Nottingham Health Profile examines the current state of health, and the answers are binary (yes/no).The overall value is calculated by multiplying the intensity of the questions by the positive answer to each one. Minimum score is 0 and maximum score is 100.

Beck Depression Inventory assesses characteristic attitudes and depression symptoms with 21 self-reported items. It takes about 10 minutes to finish the assessment. It is intended for people aged 13 and up. Beck Depression Inventory includes 21 questions. For each question, the lowest score is 0 and the maximum score is 3. The total score of all answers is evaluated as follows 0 to 9 points: "minimal depressive symptoms", 10 to 16 points: "mild depressive symptoms", 17 to 29 points: "moderate depressive symptoms", 20 to 63 points: "severe depressive symptoms".

Participation and Environment- Children and Youth is a parent-reported questionnaire to assess participation and environmental factors in the home, at school, and within community settings. The participation sections included 10 activities in the home setting, five activities in the school setting and 10 in the community setting. For each activity, parents are asked to determine the participation frequency (how frequently has the child participated with eight options: daily to never); participation involvement (how involved the child is while participating in the activity rated on a five-point scale: very involved to minimally involved); and whether change is desired (do the parents want to see change in the child's participation in this type of activity: no or yes, with five different types of change). The minimum score is 0 and the maximum score is 100.