The Relationship Between Education Status and Care Burden of Mothers of Individuals With Cerebral Palsy

This study, examines how maternal education affects caregiving burdens for children with cerebral palsy. Cerebral palsy requires long-term, intensive care, often leading to significant physical, emotional, and financial strain on caregivers. The study aims to assess whether higher maternal education is associated with lower care burdens, possibly due to increased access to resources or coping strategies, and whether lower educational levels result in greater challenges. A survey, combined with standardized measures such as the Caregiver Burden Scale, will be used to quantify the caregiving burden. The results are expected to inform policies or interventions aimed at reducing caregiver strain.

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Key information

Conditions

Cerebral Palsy Behavior Behavioral Symptoms Brain Damage, Chronic Brain Diseases Caregiver Burden Central Nervous System Diseases Nervous System Diseases Stress, Psychological

Age range

20 year–65 year

Sex eligibility

Female

Study type

Observational

About this study

This study titled "The Relationship Between the Education Status of Mothers and the Care Burden of Individuals with Cerebral Palsy" aims to explore how the education level of mothers influences their caregiving responsibilities and burdens while caring for individuals with cerebral palsy. Cerebral palsy, a neurological disorder affecting movement and muscle tone, often requires lifelong caregiving, which can be physically, emotionally, and financially demanding.

The study seeks to investigate whether mothers with higher levels of education experience lower care burdens due to greater access to resources, knowledge of coping strategies, or better healthcare utilization. Conversely, the study will also examine if mothers with lower educational attainment face more significant challenges due to limited access to support systems or information.

The research will involve a mixed-methods approach, including a survey to assess the education level of mothers and the care burden they experience. Specific tools to measure care burden, such as the Caregiver Burden Scale, will be employed. The findings aim to provide insights into the role of education in mitigating caregiving challenges and inform potential interventions or policies that could support caregivers in these situations.

Who can participate

Only the study team can determine whether someone qualifies for participation.

Inclusion criteria

Having a child who is receiving education in special education institutions
The child's diagnosis was made at least 6 months ago
The disabled individuals must be between the ages of 0-18

Exclusion criteria

Treatment and study plan

Primary outcomes

Zarit Caregiver Burden Interview

Time frame: one month

This scale was developed to assess the stress experienced by those who provide care to a person in need of care or to an elderly person. This scale can be completed by the caregivers themselves or by the researcher. It consists of 22 questions that determine the effect of caregiving on the person's life. The items in the scale are mostly emotional and social. The Turkish validity and reliability were made by Özer et al. in 2006. The scale is graded on a score of 0-4 for each question. Verbal use in the survey is never, rarely, sometimes, often, almost always. Total scores between 0-21 are classified as low or none, between 21-40 as mild or moderate, between 41-60 as moderately severe, and between 61-88 as severe burden. A high scale score indicates that the caregiver is experiencing a lot of distress.

Sponsors and collaborators

Lead sponsor

Muş Alparslan University

Other

Registry information

Important dates

Study start: 2024
Primary completion: 2024
Study completion: 2024
First posted: Oct 10, 2024
Registry last updated: Oct 10, 2024

OpenTrials presents study information sourced from ClinicalTrials.gov. The official registry record should be consulted for the latest information.

View the official ClinicalTrials.gov record (opens in a new tab)

This listing is for discovery and informational purposes only. It is not medical advice, does not guarantee that a study is recruiting, and does not determine eligibility. Contact the study team and a qualified healthcare professional when considering participation.

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Completed