The Life and Care of Patients With Colorectal Cancer Before Age 65 and Their Kindred

In a context the respect of the autonomy of the patients is important, it is necessary to pay a sustained attention to the experiences and the lived experience as well of the patients suffering or in remission of cancer as of their family. It is therefore, for the family, to deepen the synthesis carried out by the Societal Cancer Observatory which is a societal observatory of cancer

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Key information

Conditions

Colorectal Cancer Colonic Diseases Colorectal Neoplasms Digestive System Diseases Digestive System Neoplasms Gastrointestinal Diseases Gastrointestinal Neoplasms Intestinal Diseases Intestinal Neoplasms Neoplasms Neoplasms by Site Rectal Diseases

Age range

18 year–65 year

Sex eligibility

All sexes

Study type

Observational

Primary location

Registre du Cancer

Poitiers, 86021, France

Who can participate

Healthy volunteers accepted: No

Only the study team can determine whether someone qualifies for participation.

Inclusion criteria

Patients will be

over 18 years old
with a diagnosis of CRC before 65 years.
able to give their non-opposition and to nominate at least 2 family members who would be willing to participate in the study

The spouse and / or children and / or parents will be eligible:

if they are at least 18 years old, if they can be considered a caregiver or are first-degree relatives of the index patient for whom a diagnosis of CRC has been made. .

Exclusion criteria

Patients under 18 years of age or with a diagnosis of CRC after 65 years.
Near a deceased patient or under 18 years old.

Treatment and study plan

biographical interviews

Other

A sociologist trained in the sociology of cancer, to enable participants to talk about their experiences and clearly distinguish the experiences of each individual

Primary outcomes

Assess the interaction between the care path (surgery, chemotherapy, radiotherapy) and the life course in patients before 65 years old with colorectal cancer

Time frame: 2 hours

semi-structured patients interview
Assess how the patients, their relatives and their family members, face the disease.

Time frame: 1 hour

semi-structured patients interview

Sponsors and collaborators

Lead sponsor

Poitiers University Hospital

Other

Registry information

Acronym: MACHROAPIK

Important dates

Study start: 2018
Primary completion: 2021
Study completion: 2021
First posted: Jun 30, 2020
Registry last updated: Sep 29, 2021

OpenTrials presents study information sourced from ClinicalTrials.gov. The official registry record should be consulted for the latest information.

View the official ClinicalTrials.gov record (opens in a new tab)

This listing is for discovery and informational purposes only. It is not medical advice, does not guarantee that a study is recruiting, and does not determine eligibility. Contact the study team and a qualified healthcare professional when considering participation.

Published trials that share one or more normalized conditions with this study.

Completed