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OpenTrials
Completed

NCT Number: NCT03905954

The Impact of a Diagnosis of Parkinson's on Work

Parkinson's disease leads to loss of employment on average within less than 10 years of disease onset and has been found to be associated with an increased absence from work. This combined with hospitalisation; use of secondary health services; drug usage; and caregivers needing to give up work contributed to the costs associated with the conditions. It has been estimated that early support for working age newly diagnosed would cost the government about 1.5 million Euro in the UK but might lead to a potential cost saving of over half a billion over 5 years.

The study will explore the impact of a Parkinson diagnosis on employment. The study will be survey based and will include demographic questions: age, age at diagnosis of PD, educational level, and Nationality; questions pertaining to employment type, history, and reasons for leaving if this happened; and also general health.

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Key information

Conditions

Parkinson Disease Basal Ganglia Diseases Brain Diseases Central Nervous System Diseases Disease Movement Disorders Nervous System Diseases Neurodegenerative Diseases Parkinsonian Disorders Pathologic Processes Pathological Conditions, Signs and Symptoms Synucleinopathies

Age range

18 year–99 year

Sex eligibility

All sexes

Study type

Observational

Primary location

Oxford Brookes University

Oxford, Oxfordshire, OX3 0SB, United Kingdom

Who can participate

Healthy volunteers accepted: No

Only the study team can determine whether someone qualifies for participation.

Inclusion criteria

Diagnosis of Parkinson

Exclusion criteria

None

Treatment and study plan

Usual Care

Other

For this cross sectional survey, participants will be receiving usual care according to there health care systems

Primary outcomes

  1. Main occupation in the last 7 days

    Time frame: baseline only (cross sectional)

    Questions asks: 'Which of these descriptions applies to your main occupation in the last seven days? and has the following options.

    'In paid work (OR AWAY TEMPORARILY) (employee, self-employed, working for your family business) Unemployed and actively looking for a job Unemployed, wanting a job but not actively looking for a job Permanently sick or disabled In community or military service Doing housework, looking after children or other persons Retired In paid work (OR AWAY TEMPORARILY) (employee, self-employed, working for your family business) Unemployed and actively looking for a job Unemployed, wanting a job but not actively looking for a job Permanently sick or disabled In community or military service Doing housework, looking after children or other persons Retired Student

Secondary outcomes

  1. Type of Work

    Time frame: baseline only (cross sectional)

    Questions asks: 'Which category would best describe your current main occupation or skill set?' Managers or directors Professionals Technicians and Associate Professionals Clerical Support Workers Services and Sales Workers Skilled Agricultural, Forestry, and Fishery Workers Craft and Related Trades Workers Plant and Machine Operators and Assemblers Elementary Occupations eg salespersons, domestic, helpers, porters Armed Forces Occupations

  2. Symptom Severity-Distress

    Time frame: baseline only (cross sectional)

    0-10 visual analogue scale (0 worst - 10 best)

  3. Symptom Severity-Pain

    Time frame: baseline only (cross sectional)

    0-10 visual analogue scale (0 worst - 10 best)

  4. Symptom Severity-Fatigue

    Time frame: baseline only (cross sectional)

    0-10 visual analogue scale (0 worst - 10 best)

  5. Symptom Severity-Depression

    Time frame: baseline only (cross sectional)

    0-10 visual analogue scale (0 worst - 10 best)

  6. Symptom Severity-Anxiety

    Time frame: baseline only (cross sectional)

    0-10 visual analogue scale (0 worst - 10 best)

  7. Symptom Severity - Sleep

    Time frame: baseline only (cross sectional)

    0-10 visual analogue scale (0 worst - 10 best)

  8. Single Item Physical activity

    Time frame: baseline only (cross sectional)

    Days per week of physical activity lasting 30 minutes or longer on a 0-7 integer scale

  9. Single Item Diet

    Time frame: baseline only (cross sectional)

    Portions of fruit and vegetables consume per day on a 0-5+ integer scale

Sponsors and collaborators

Lead sponsor

Oxford Brookes University

Other

Collaborators

  • European Parkinson's Therapy Centre

Registry information

Important dates

Study start
2019
Primary completion
2019
Study completion
2019
First posted
Apr 8, 2019
Registry last updated
Mar 3, 2020

OpenTrials presents study information sourced from ClinicalTrials.gov. The official registry record should be consulted for the latest information.

View the official ClinicalTrials.gov record (opens in a new tab)

This listing is for discovery and informational purposes only. It is not medical advice, does not guarantee that a study is recruiting, and does not determine eligibility. Contact the study team and a qualified healthcare professional when considering participation.

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