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NCT Number: NCT07527416

Textual Analysis of Narratives Produced by Adolescent Oncology Patients: A Research Project

This research project builds on a long-standing tradition within our Institute of documenting "free thoughts" and personal reflections shared by adolescent oncology patients and their families. These narratives, collected through "logbooks" in ward rooms and during dedicated events-including those focused on the COVID-19 pandemic-represent a profound tool for patients to reclaim their identity beyond their diagnosis.

The aim is to stimulate and collect patient narratives to better understand their emotional and lived experiences. By analyzing these spontaneous writings, the study aims to improve clinical practice, enhance the patient-provider relationship, and optimize the overall healthcare organization.

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Key information

Conditions

Cancer Neoplasms

Age range

13 year–25 year

Sex eligibility

All sexes

Study type

Observational

Primary location

Centro di Riferimento Oncologico di Aviano (CRO) IRCCS

Aviano, Italy, 33080

Location status: Recruiting

Location contact

Maurizio Mascarin, Msc

CONTACT

[email protected]

+390403785111

Who can participate

Healthy volunteers accepted: No

Only the study team can determine whether someone qualifies for participation.

Inclusion criteria

  • adolescents and young adults treated at the Area giovani CRO from 2021
  • willing to participate at the study

Exclusion criteria

  • absence of informed consent

Treatment and study plan

Primary outcomes

  1. Thematic Analysis of Patient Narratives

    Time frame: 10 years

    Evaluation of narrative content to identify key themes, semantic fields (values, emotions, perceptions), and prevailing cultural orientations. The analysis aims to characterize the patient's experience and identify potential unresolved conflicts related to the oncological journey, as defined by Pinardi and De Angelis (2006) methodology.

  2. Structural Analysis of the text

    Time frame: 10 years

    To identify and examine the core elements of the text, including the narrator, characters, spatial and temporal settings, and point of view.

  3. Stylistic Analysis

    Time frame: 10 years

    Evaluation of the linguistic register and the identification of key rhetorical figures used to convey personal meaning

  4. Processual Analysis

    Time frame: 10 years

    ased on the "Processual Analysis" framework (Turchi, 2007), this phase describes the architecture of the text starting from the discursive processes (repertoires) employed by the narrators. The goal is to identify how specific uses of language generate and define the participants' configurations of reality. All the analyses are qualitative

Sponsors and collaborators

Lead sponsor

Centro di Riferimento Oncologico - Aviano

Other

Registry information

Acronym: Testi AYA

Important dates

Study start
2021
Primary completion
2027
Study completion
2027
First posted
Apr 14, 2026
Registry last updated
Apr 14, 2026

OpenTrials presents study information sourced from ClinicalTrials.gov. The official registry record should be consulted for the latest information.

View the official ClinicalTrials.gov record (opens in a new tab)

This listing is for discovery and informational purposes only. It is not medical advice, does not guarantee that a study is recruiting, and does not determine eligibility. Contact the study team and a qualified healthcare professional when considering participation.

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