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Recruiting

NCT Number: NCT05654246

Susan G. Komen's ShareForCures

ShareForCures (SFC) is a community-based participatory research registry, and its prime objective is to engage participants representative of the United States breast cancer patient population -including minoritized and historically marginalized people, persons, or communities-to ensure the data researchers use to study breast cancer is as diverse as the people touched by this disease. In doing so, researchers will have a better understanding of breast cancer, and everyone can potentially benefit from scientific advances and improvements in care.

Recruiting

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Key information

Conditions

Breast Cancer Breast Diseases Breast Neoplasms Neoplasms Neoplasms by Site Skin Diseases Skin and Connective Tissue Diseases

Age range

18 year and older

Sex eligibility

All sexes

Study type

Observational

Primary location

Susan G. Komen

Dallas, Texas, 75380, United States

Location status: Recruiting

Location contact

Jerome Jourquin, Ph.D., M.S.

CONTACT

[email protected]

1-877-465-6636

About this study

ShareForCures (SFC) will be a people-powered, data-driven breast cancer registry that will provide a way for individuals from diverse backgrounds to participate in research and enable participants' data to be used for breast cancer research. The overarching goal of SFC is to create a robust research resource comprised of clinical, biological, socio-behavioral, and other data from up to 200,000 people with breast cancer-including minoritized and historically marginalized people, persons, or communities-to ensure the data, researchers use to study breast cancer, is as diverse as the people touched by this disease. In doing so, researchers will have a better understanding of breast cancer and everyone can potentially benefit from scientific advances and improvements in care.

Who can participate

Healthy volunteers accepted: No

Only the study team can determine whether someone qualifies for participation.

Inclusion criteria

  • Individuals must be at least 18 years old. (Individuals in Alabama and Nebraska must be over 19 and individuals in Mississippi and Pennsylvania must be over 21 to participate).
  • Individuals must have been diagnosed with cancer originating (or is suspected to originate) from the breast.
  • Individuals must be currently residing in the United States or a territory of the United States.
  • Individuals must be able to read and understand English.

Exclusion criteria

  • Individuals under the age of 18 years. (Individuals in Alabama and Nebraska under 19 and individuals in Mississippi and Pennsylvania under 21 are not eligible to participate).
  • Individuals without a diagnosis of breast cancer.
  • Individuals who are not residing in the United States or a territory of the United States.
  • Individuals unable to read and understand English.

Treatment and study plan

Primary outcomes

  1. Engage participants representative of the United States breast cancer patient population in ShareForCures.

    Time frame: 10 years

    Enroll and engage up to 200,000 people, who have been diagnosed with breast cancer, reflecting the diversity of breast cancer survivors within the United States, to participate in the registry as our partners in research.

  2. Integrate participant data into ShareForCures.

    Time frame: 10 years

    Collect and curate a rich scope of participant data from a variety of sources (including participant-provided information, clinical records, and linkage to other existing datasets) and biospecimens to create a comprehensive, longitudinal database.

  3. Facilitate scientific research using ShareForCures data.

    Time frame: 10 years

    Make deidentified data available to researchers for scientific discoveries, including research that may lead to new knowledge about breast cancer and advances in patient care and outcomes.

Study contacts

Contact information is provided by the study sponsor or research team.

Jerome Jourquin, Ph.D., M.S.

CONTACT

[email protected]

1-877-465-6636

Sponsors and collaborators

Lead sponsor

Susan G. Komen Breast Cancer Foundation

Other

Registry information

Official study title

ShareForCures: Susan G. Komen's People-powered, Data-driven Breast Cancer Research Registry

Important dates

Study start
2022
Primary completion
2032
Study completion
2032
First posted
Dec 16, 2022
Registry last updated
Mar 6, 2026

OpenTrials presents study information sourced from ClinicalTrials.gov. The official registry record should be consulted for the latest information.

View the official ClinicalTrials.gov record (opens in a new tab)

This listing is for discovery and informational purposes only. It is not medical advice, does not guarantee that a study is recruiting, and does not determine eligibility. Contact the study team and a qualified healthcare professional when considering participation.

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