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Completed

NCT Number: NCT01130220

Study of the Health Information Needs of Brain Cancer Patients

The purpose of this research is to explore the factors involved in brain cancer health care literacy needs.

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Key information

Conditions

Brain Tumor Brain Diseases Brain Neoplasms Central Nervous System Diseases Central Nervous System Neoplasms Neoplasms Neoplasms by Site Nervous System Diseases Nervous System Neoplasms

Age range

18 year–89 year

Sex eligibility

All sexes

Study type

Observational

Primary location

University of Florida

Gainesville, Florida, 32610, United States

About this study

A mere subset of the reasons behind unmet health care literacy needs include the health care systems' increasing complexity, increased time constraints, profound treatment decision making requirements, decreased financial resources, fracturing social networks and diversifying educational and cultural needs.

This project will use focus groups to explore the factors involved in brain cancer health care literacy from the perspectives of patients and those involved in their care. Hypothesis generated from this project will be directly applied toward future projects. The overarching goals are improved access and adequacy of health care literacy information through the eventual development of validated, useful, reliable health care literacy information tools for brain cancer patients and those involved in their care.

Who can participate

Healthy volunteers accepted: No

Only the study team can determine whether someone qualifies for participation.

Inclusion criteria

BRAIN TUMOR PATIENTS:

  • 18 to 89 years of age
  • Have or have had any type of brain tumor
  • Ability to communicate in English
  • Willingness to participate in a 30-60 minute focus group

HEALTH CARE PROVIDERS:

  • 18 to 89 years of age
  • Be a health care provider who cares for any type of brain tumor
  • Ability to communicate in English
  • Willingness to participate in a 30-60 minute focus group

Exclusion criteria

  • None

Treatment and study plan

Focus Group

Other

A single focus group will be held until a "saturation" of themes has been identified.

Primary outcomes

  1. Explore the factors involved in health care literacy from the perspective of brain cancer patients.

    Time frame: 1 Year

    An investigator experienced in semi-structured focus group research will faclitate focus group sessions by using a generalized list of topics and open-ended discussion questions.

Secondary outcomes

  1. Explore the factors involved in health care literacy from the perspective of health care providers.

    Time frame: 1 Year

    An investigator experienced in semi-structured focus group research will faclitate focus group sessions by using a generalized list of topics and open-ended discussion questions.

Sponsors and collaborators

Lead sponsor

University of Florida

Other

Registry information

Official study title

Informed Brain Cancer Patients

Important dates

Study start
2010
Primary completion
2011
Study completion
2011
First posted
May 25, 2010
Registry last updated
Jul 25, 2012

OpenTrials presents study information sourced from ClinicalTrials.gov. The official registry record should be consulted for the latest information.

View the official ClinicalTrials.gov record (opens in a new tab)

This listing is for discovery and informational purposes only. It is not medical advice, does not guarantee that a study is recruiting, and does not determine eligibility. Contact the study team and a qualified healthcare professional when considering participation.

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