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Completed

NCT Number: NCT00735488

Sickle Cell Anemia Screening and Prevention in Northern Israel

Since 1987, a screening for β Thalassemia in pregnant women is carried on in northern Israel, and from 1999 all the samples were tested also for Hgb S, Hgb C, Hgb D, Hgb O Arab and others.

In this study, the investigators intend to summarize the results of this preventive program aiming to detect couples at risk for having offspring with Thalassemia or SCA, the compliance regard to genetic counseling and prenatal diagnosis and the incidence of new affected babies born.

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Key information

Conditions

Thalassemia Anemia Anemia, Hemolytic Anemia, Hemolytic, Congenital Anemia, Sickle Cell Congenital, Hereditary, and Neonatal Diseases and Abnormalities Genetic Diseases, Inborn Hematologic Diseases Hemic and Lymphatic Diseases Hemoglobinopathies Sickle Cell Anemia

Age range

18 year and older

Sex eligibility

All sexes

Study type

Observational

Primary location

Pediatric Hematology Unit - Ha'Emek Medical Center

Afula, 18101, Israel

Who can participate

Healthy volunteers accepted: No

Only the study team can determine whether someone qualifies for participation.

Inclusion criteria

All pregnant women tested and their husband in those cases that the woman test revealed abnormal hemoglobin.

Exclusion criteria

No exclusion criteria.

Treatment and study plan

Observational

Other

Summary of data

Primary outcomes

  1. Number of carriers detected

    Time frame: End of study

Secondary outcomes

  1. Couples referred for prenatal diagnosis

    Time frame: End of study

Sponsors and collaborators

Lead sponsor

HaEmek Medical Center, Israel

Other

Collaborators

  • Ministry of Health, Israel

Registry information

Official study title

Summary of the Data From the Prevention Programme for Hemoglobinopathies in Northern Israel

Important dates

Study start
2008
Primary completion
2009
Study completion
2009
First posted
Aug 15, 2008
Registry last updated
Sep 1, 2015

OpenTrials presents study information sourced from ClinicalTrials.gov. The official registry record should be consulted for the latest information.

View the official ClinicalTrials.gov record (opens in a new tab)

This listing is for discovery and informational purposes only. It is not medical advice, does not guarantee that a study is recruiting, and does not determine eligibility. Contact the study team and a qualified healthcare professional when considering participation.

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