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OpenTrials
Recruiting

NCT Number: NCT03017755

Scoliosis Survey to Development Treatment Decision Tool

This is a survey to help understand the influences related to the decision for Adolescent Idiopathic Scoliosis treatment (observation vs. bracing vs. surgery). The investigator then plans to create a decision aid to help families when making a decision about the treatment choice being presented to them.

Recruiting

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Key information

Conditions

Scoliosis; Adolescence Bone Diseases Musculoskeletal Diseases Scoliosis Spinal Curvatures Spinal Diseases

Age range

13 year and older

Sex eligibility

All sexes

Study type

Observational

Primary location

Mayo Clinic

Rochester, Minnesota, 55905, United States

Location status: Recruiting

Location contact

Natalie Pulido

CONTACT

[email protected]

About this study

This survey is designed to help understand the factors that families consider to help make treatment decisions related to Adolescent Idiopathic Scoliosis (AIS). The surveys will then be used to help create a shared decision making tool to help families better understand the treatment options and optimize clinical conversations surrounding AIS treatment.

Who can participate

Healthy volunteers accepted: No

Only the study team can determine whether someone qualifies for participation.

Inclusion criteria

  • Subject (and/or parent of subject) who has previously been treated for Adolescent Idiopathic Scoliosis (AIS)

Exclusion criteria

  • Age less than or equal to 12 years

Treatment and study plan

Survey for Patients Treated for Scoliosis and ther Families

Other

Your Scoliosis Journey: A Survey for Patients Treated for Scoliosis and ther Families

Primary outcomes

  1. Number of subjects who completed the survey

    Time frame: Baseline, approximately 3 years

    Number of subjects who completed the survey

Study contacts

Contact information is provided by the study sponsor or research team.

Damian Paulson

CONTACT

[email protected]

507-293-6713

Sponsors and collaborators

Lead sponsor

Mayo Clinic

Other

Registry information

Official study title

Your Scoliosis Journey: A Survey for Patients Treated for Scoliosis and Their Families

Important dates

Study start
2017
Primary completion
2026
Study completion
2026
First posted
Jan 11, 2017
Registry last updated
Jan 2, 2026

OpenTrials presents study information sourced from ClinicalTrials.gov. The official registry record should be consulted for the latest information.

View the official ClinicalTrials.gov record (opens in a new tab)

This listing is for discovery and informational purposes only. It is not medical advice, does not guarantee that a study is recruiting, and does not determine eligibility. Contact the study team and a qualified healthcare professional when considering participation.

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