Scleroderma Registry & Repository at the Hospital for Special Surgery

What will be asked of you:

• Completion of 2 health questionnaires
• Donation of research bloods. This is optional, but encouraged (if possible).
• We also encourage patients who come for initial visits to return so follow-up data can be collected.

Benefits to Patients:

• The HSS Scleroderma Registry gives patients the opportunity to participate in observational research with the goal of improving the lives of patients in the future.
• By donating research bloods and providing clinical information, patients will help generate new knowledge about Scleroderma that can guide the treatment and care of patients afflicted with this rare disease.
• Patients will also receive a comprehensive, medical evaluation from an HSS physician who specializes in treating Scleroderma. He or she will provide guidance on treatment options and recommendations for current or upcoming clinical trials.
• Physicians will also make patients aware of the resources available to them, including support groups and educational programs.

Inclusion criteria

• Individuals older than 18 years of age with Scleroderma

Exclusion criteria

• Individuals younger than 18 years of age
• Individuals older than 18 years of age without Scleroderma