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OpenTrials
Completed

NCT Number: NCT04544761

Resilience in Persons Following Spinal Cord Injury

This study aims to quantify resilience in survivors of a spinal cord injury. The study will consist of structured interviews and self-reported surveys. We will look for common themes between participants at different stages of injury (1-5 years, 5-15 years, >15 Years).

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Key information

Conditions

Spinal Cord Injuries Central Nervous System Diseases Nervous System Diseases Spinal Cord Diseases Trauma, Nervous System Wounds and Injuries

Age range

18 year–80 year

Sex eligibility

All sexes

Study type

Observational

Primary location

Shirley Ryan AbilityLab

Chicago, Illinois, 60611, United States

About this study

The goal of this project is to broaden the understanding of the lived experience of aging with a disability, from the perspectives of individuals with physical disabilities resulting from spinal cord injury (SCI). The specific objectives of this project are to:

  • Learn how people with SCI attain and maintain optimal quality of life as they age.
  • Understand how people with SCI develop resilience as they grow older.
  • Understand how individual quality of life is related to the degree and mechanism of resilience among people with SCI.
  • Learn which resources and practices have been most helpful and useful to people with SCI as they age with their disability.
  • Assess personal, behavioral, and environmental factors that contribute to resilience and quality of life among people aging with SCI.
  • Refine and confirm a holistic model for the relationships among the concepts of resilience, quality of life, and person-centered factors (resources, behaviors).

Through in-depth interviews and detailed surveys, we will explore how people with SCI attain and maintain optimal quality of life as they age, and how their quality of life relates to resiliency as they traverse the path of aging with SCI. We will explore with participants the resources and practices that have been most helpful and useful to them as they age with their disability.

Who can participate

Healthy volunteers accepted: No

Only the study team can determine whether someone qualifies for participation.

Inclusion criteria

  • 18-80 years old
  • History of Traumatic Spinal Cord Injury at least 1 year prior
  • Ability to self-report on factors affecting health and well being Exclusion Criteria
  • Progressive Spinal Cord Injury

Treatment and study plan

Structured Interview

Other

Structured interview with research staff about your experience living with spinal cord injury

Primary outcomes

  1. Themes Survey

    Time frame: 1 day (Single time point)

    Common themes from the structured interviews

Secondary outcomes

  1. Resilience

    Time frame: 1 day (Single time point)

    Measure of resilience from Connor-Davidson Resilience Scale [0-40], low score indicates greater resilience

Other outcomes

  1. Health Questionnaire Surveys

    Time frame: 1 day (Single time point)

    Short Form-12 Health Survey [30-70] 50 indicates US average, values higher than 50 indicate better outcomes

Sponsors and collaborators

Lead sponsor

Shirley Ryan AbilityLab

Other

Collaborators

  • Kiwanis Neurological Research Foundation

Registry information

Official study title

Resilience in People Following Spinal Cord Injury

Important dates

Study start
2020
Primary completion
2022
Study completion
2024
First posted
Sep 10, 2020
Registry last updated
Mar 20, 2026

OpenTrials presents study information sourced from ClinicalTrials.gov. The official registry record should be consulted for the latest information.

View the official ClinicalTrials.gov record (opens in a new tab)

This listing is for discovery and informational purposes only. It is not medical advice, does not guarantee that a study is recruiting, and does not determine eligibility. Contact the study team and a qualified healthcare professional when considering participation.

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