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Recruiting

NCT Number: NCT04690374

Registry to Collect Health Information About Desmoplastic Small Round Cell Tumor

This study is a patient registry of people with Desmoplastic Small Round Cell Tumor (DSRCT). A patient registry is a collection of health information about a group of people, and it is usually focused on a specific diagnosis or disease.

The purpose of this registry is to create a database- a collection of information-or better understanding DSRCT. Researchers will use the information from this database to learn more about DSRCT and for current and future research on DSRCT.

Recruiting

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Key information

Conditions

Desmoplastic Small Round Cell Tumor Neoplasms Neoplasms by Histologic Type Neoplasms, Connective and Soft Tissue Sarcoma

Sex eligibility

All sexes

Study type

Observational

Primary location

Memorial Sloan Kettering Cancer Center (All Protocol Activities)

New York, 10065, United States

Location status: Recruiting

Location contact

Emily Slotkin, MD

CONTACT

833-675-5437

Emily Slotkin, MD

PRINCIPAL_INVESTIGATOR

Shakeel Modak, MD

CONTACT

1-833-675-5437

Who can participate

Healthy volunteers accepted: No

Only the study team can determine whether someone qualifies for participation.

Inclusion criteria

  • Participants must have a diagnosis of desmoplastic small round cell tumor
  • Participants may be of any age as long as the appropriate consent and assent may be obtained
  • Willing to provide historical and longitudinal clinical data

Exclusion criteria

  • Participant unwilling to provide consent or share historical and longitudinal clinical data

Treatment and study plan

Primary outcomes

  1. Registry to Collect Health Information About Desmoplastic Small Round Cell Tumor

    Time frame: 7 years

    The aim of this study is the collection of data.

Study contacts

Contact information is provided by the study sponsor or research team.

Emily Slotkin, MD

CONTACT

[email protected]

1-833-675-5437

Shakeel Modak, MD

CONTACT

1-833-675-5437

Sponsors and collaborators

Lead sponsor

Memorial Sloan Kettering Cancer Center

Other

Registry information

Official study title

Registry for Patients With Desmoplastic Small Round Cell Tumor

Important dates

Study start
2020
Primary completion
2027
Study completion
2027
First posted
Dec 30, 2020
Registry last updated
Jan 12, 2026

OpenTrials presents study information sourced from ClinicalTrials.gov. The official registry record should be consulted for the latest information.

View the official ClinicalTrials.gov record (opens in a new tab)

This listing is for discovery and informational purposes only. It is not medical advice, does not guarantee that a study is recruiting, and does not determine eligibility. Contact the study team and a qualified healthcare professional when considering participation.

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