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NCT Number: NCT05329714

PVRI GoDeep Global Deep Phenotyping Meta-Registry for Pulmonary Hypertension

PVRI-GoDeep is a PH Meta-Registry, run under the umbrella of the Pulmonary Vascular Research Institute (PVRI). It merges anonymized PH patient related data from various local registries around the world run under the responsibility of PVRI members. It will be operated under the auspices of the University of Giessen/Giessen PH center. Combining deep phenotyping with worldwide outreach, PVRI-GoDeep aims to offer insights into specific geographical and ethnical profiles of PH, to deepen the epidemiological, clinical and molecular understanding of this disease and to promote strategies for improved individualized treatment of PH patients.

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Key information

Conditions

Pulmonary Hypertension Cardiovascular Diseases Global Health Hypertension Hypertension, Pulmonary Lung Diseases Respiratory Tract Diseases Vascular Diseases

Sex eligibility

All sexes

Study type

Observational

Primary location

University Giessen PH Center

Giessen, Hesse, 35392, Germany

Location status: Recruiting

Location contact

Henning Gall

CONTACT

[email protected]

About this study

PVRI-GoDeep is a PH Meta-Registry, run under the umbrella of the Pulmonary Vascular Research Institute (PVRI). It merges anonymized PH patient related data from various local registries around the world run under the responsibility of PVRI members. It will be operated under the auspices of the University of Giessen/Giessen PH center.

Combining deep phenotyping with worldwide outreach, PVRI-GoDeep aims to offer insights into specific geographical and ethnical profiles of PH, to deepen the epidemiological, clinical and molecular understanding of this disease and to promote strategies for improved individualized treatment of PH patients.

The data provided by PVRI-GoDeep will support academia to perform scientific projects in the field of PH. Pharmaceutical / commercial companies will be charged fee for access to PVRI-GoDeep data and / or analysis, thereby creating revenues exclusively devoted to support the PVRI mission and the registries entering their data into PVRI-GoDeep. All requests from academia or commercial companies are to be decided by the PVRI-GoDeep consortium, serving as Use and Access Committee.

Who can participate

Healthy volunteers accepted: Yes

Only the study team can determine whether someone qualifies for participation.

Inclusion criteria

  • Clinical Diagnosis of Pulmonary Hypertension

Exclusion criteria

  • none

Treatment and study plan

Primary outcomes

  1. Global analysis of PH patients

    Time frame: From entry into the registry up to 10 years

    Global comparison and analysis of the course of disease of PH patients

Study contacts

Contact information is provided by the study sponsor or research team.

Raphael W Majeed

CONTACT

[email protected]

+49 641 985 42502

Sponsors and collaborators

Lead sponsor

University of Giessen

Other

Collaborators

  • Academy of Medical Sciences of Ukraine
  • Aristotle University Of Thessaloniki
  • China-Japan Friendship Hospital
  • Fiona Stanley Hospital
  • Gold Coast Hospital and Health Service
  • Hospital de Niños de la Santísima Trinidad
  • Imperial College London
  • Johns Hopkins University
  • Mayo Clinic
  • Medical University of Graz
  • Milpark Hospital
  • National Hospital Organization Okayama Medical Center
  • National and Kapodistrian University of Athens
  • Royal Hobart Hospital
  • Royal Prince Alfred Hospital, Sydney, Australia
  • Stanford University
  • Sunshine Coast University Hospital
  • The Methodist Hospital Research Institute
  • Universidad Nacional de La Plata
  • University Hospital Heidelberg
  • University Hospital of Targu Mures, Romania
  • University Hospital, Zürich
  • University of Minnesota
  • University of Pavia
  • University of Pittsburgh
  • University of Sheffield
  • Vanderbilt University Medical Center

Registry information

Official study title

PVRI Global Deep Phenotyping Meta-Registry for Pulmonary Hypertension

Acronym: PVRI GoDeep

Important dates

Study start
2020
Primary completion
2050
Study completion
2055
First posted
Apr 15, 2022
Registry last updated
Apr 4, 2025

OpenTrials presents study information sourced from ClinicalTrials.gov. The official registry record should be consulted for the latest information.

View the official ClinicalTrials.gov record (opens in a new tab)

This listing is for discovery and informational purposes only. It is not medical advice, does not guarantee that a study is recruiting, and does not determine eligibility. Contact the study team and a qualified healthcare professional when considering participation.

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