Psychosocial Burden of Epilepsy

This study aims to investigate the educational, occupational, and social challenges experienced by individuals with epilepsy using structured questionnaires developed by the research team. Despite advances in diagnosis and treatment, people with epilepsy may continue to face difficulties related to stigma, access to opportunities, and daily functioning. Participants will complete survey forms designed to assess barriers encountered in school, workplace, and social environments, as well as their perceptions and experiences related to living with epilepsy. The findings are expected to provide insight into unmet needs and inform strategies to improve support and quality of life for individuals with epilepsy.

Completed

Looking for future studies?

Notify Me

Key information

Conditions

Epilepsy Brain Diseases Central Nervous System Diseases Nervous System Diseases

Age range

18 year and older

Sex eligibility

All sexes

Study type

Observational

Primary location

Saglik Bilimleri University Izmir Faculty of Medicine Department of Neurology

Izmir, Turkey (Türkiye)

Who can participate

Healthy volunteers accepted: No

Only the study team can determine whether someone qualifies for participation.

Inclusion criteria

Inclusion Criteria

Adults aged 18 years or older

Clinical diagnosis of epilepsy confirmed by a neurologist

Able to understand and complete the questionnaire

Willing to provide informed consent

Exclusion criteria

Severe cognitive impairment preventing reliable questionnaire completion

Acute medical or psychiatric condition interfering with participation

Inability to communicate effectively in the study language

Treatment and study plan

Primary outcomes

Educational, occupational, and social difficulties

Time frame: At study enrollment (single assessment)

The proportion and severity of self-reported difficulties experienced by individuals with epilepsy in educational settings, workplace participation, and social life, as measured by structured survey forms designed by the research team.

Sponsors and collaborators

Lead sponsor

Saglik Bilimleri Universitesi

Other

Registry information

Official study title

Perceived Stigma, and Social Misconceptions in People With Epilepsy

Important dates

Study start: 2026
Primary completion: 2026
Study completion: 2026
First posted: Mar 4, 2026
Registry last updated: Apr 30, 2026

OpenTrials presents study information sourced from ClinicalTrials.gov. The official registry record should be consulted for the latest information.

View the official ClinicalTrials.gov record (opens in a new tab)

This listing is for discovery and informational purposes only. It is not medical advice, does not guarantee that a study is recruiting, and does not determine eligibility. Contact the study team and a qualified healthcare professional when considering participation.

Published trials that share one or more normalized conditions with this study.

Completed