Perspectives on Bone Marrow Donors Who Donate for Their Parent

The purpose of this pilot study is to explore the role of family function on decision-making for bone marrow donors who donated for their parent, and to assess the unique supportive care needs of these participants. Semi-structured interviews were conducted with participants to identify overarching themes of the donation experience.

Completed

Looking for future studies?

Notify Me

Key information

Conditions

Bone Marrow Transplant

Age range

13 year and older

Sex eligibility

All sexes

Study type

Observational

Who can participate

Healthy volunteers accepted: Yes

Only the study team can determine whether someone qualifies for participation.

Inclusion criteria

Donated bone marrow or peripheral blood stem cells for their parent in the past 1-6 months
Willing to participate in mandatory audio recorded telephone interview
Able to participate in interview without assistance
Must be English speaking
Transplant recipient (parent) must be living

Exclusion criteria

Unable to provide oral consent for participation (for minors- unable to obtain parental consent and/or oral assent from child for participation)

Treatment and study plan

semi-structured interview

Other

Primary outcomes

Themes influencing donors' decision-making as assessed by words used during interview responses

Time frame: Day 1

Words/terms are extracted from interviewer responses and associated to key themes that influence participant's decision-making process. A codebook is used to reference these words/terms

Sponsors and collaborators

Lead sponsor

Sidney Kimmel Comprehensive Cancer Center at Johns Hopkins

Other

Collaborators

Duke University

Registry information

Official study title

Perspectives on the Adolescent, Young Adult, and Adult Experience as Donors for Their Parent Undergoing Haploidentical Bone Marrow Transplants

Important dates

Study start: 2016
Primary completion: 2017
Study completion: 2017
First posted: Nov 29, 2018
Registry last updated: Nov 30, 2018

OpenTrials presents study information sourced from ClinicalTrials.gov. The official registry record should be consulted for the latest information.

View the official ClinicalTrials.gov record (opens in a new tab)

This listing is for discovery and informational purposes only. It is not medical advice, does not guarantee that a study is recruiting, and does not determine eligibility. Contact the study team and a qualified healthcare professional when considering participation.

Published trials that share one or more normalized conditions with this study.

Completed