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OpenTrials
Completed

NCT Number: NCT02390557

Persons With Disabilities Generating Quality Metrics

No standard way exists to measure the quality of medical care or independent living long-term services and supports provided to persons with disabilities. This project will: provide a broader picture of how consumers with disabilities define care and care quality; measure the value of using consumers' expertise in developing, collecting, and assessing quality measures; and use this information to assist One Care providers in improving care delivered to their enrollees

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Key information

Age range

21 year–64 year

Sex eligibility

All sexes

Study type

Interventional

Phase

Not applicable

About this study

The aims of the project are as follows:

  • To work with persons with significant physical disabilities and serious and persistent mental illness to develop two new approaches to assess quality of care:

Approach #1: We will survey enrollees about their experiences in One Care and their thoughts about the care they receive. This survey will also ask One Care enrollees about how they manage their care and what self-direction means to them. The survey will be called the Persons with Disabilities Quality Survey (PDQ-S), and it will be available in English and Spanish versions.

Approach #2: Enrollees in One Care will provide information about their perceptions of care quality to a trained team of persons with disabilities who will report the information to One Care care teams. The goal of the activity is to support quality improvement in One Care through hearing the consumer's voice. This is called YES Health - Your Experience: Speak up for better health care.

  • We want to test how providing consumer informed and consumer directed quality information to One Care providers affects One Care quality.
  • We want to improve the ability of One Care enrollees to manage their own health care and to recognize and report quality problems

Who can participate

Healthy volunteers accepted: No

Only the study team can determine whether someone qualifies for participation.

Inclusion criteria

  • One Care enrollee
  • Permanent physical disability and/or serious mental illness
  • Seen at designated practice site
  • English or Spanish speaking

Exclusion criteria

  • Persons with an intellectual or a developmental disability

Treatment and study plan

Survey

Other

PDQS survey reports only

YESHealth

Other

Arm 3: YESHealth and PDQS survey reports to providers

Primary outcomes

  1. Improved Quality of Care

    Time frame: 12 months

    % who agree that their quality of care Is better, the same or worse than before

Sponsors and collaborators

Lead sponsor

Massachusetts General Hospital

Other

Collaborators

  • Patient-Centered Outcomes Research Institute

Registry information

Official study title

Persons With Disabilities Generating Quality Metrics to Inform Integrated Care

Important dates

Study start
2015
Primary completion
2016
Study completion
2016
First posted
Mar 17, 2015
Registry last updated
Nov 21, 2018

OpenTrials presents study information sourced from ClinicalTrials.gov. The official registry record should be consulted for the latest information.

View the official ClinicalTrials.gov record (opens in a new tab)

This listing is for discovery and informational purposes only. It is not medical advice, does not guarantee that a study is recruiting, and does not determine eligibility. Contact the study team and a qualified healthcare professional when considering participation.

Published trials that share one or more normalized conditions with this study.