Pediatric Radiation Therapy Registry

The Johns Hopkins Pediatric Radiation Oncology Program is creating a registry that will capture the full 3D radiation dosimetry delivered to its pediatric patients to manage the quality of care provided, as well as to examine the long-term outcomes and toxicity of each patient. The registry will capture baseline clinical data, disease, toxicity, and quality of life outcomes. The goal is to include all pediatric patients undergoing proton therapy and photon therapy to enable future comparisons of treatment outcomes.

Recruiting

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Key information

Conditions

Sarcoma Brain Diseases Brain Neoplasms Central Nervous System Diseases Central Nervous System Neoplasms Neoplasms Neoplasms by Histologic Type Neoplasms by Site Neoplasms, Connective and Soft Tissue Nervous System Diseases Nervous System Neoplasms Pediatric Brain Tumors

Age range

0 year–26 year

Sex eligibility

All sexes

Study type

Observational

Primary location

Sibley Memorial Hospital, Washington D.C., District of Columbia, United States

Who can participate

Healthy volunteers accepted: No

Only the study team can determine whether someone qualifies for participation.

Inclusion criteria

Treatment with either proton or photon radiation therapy.

Exclusion criteria

Greater than 26 years old

Treatment and study plan

Primary outcomes

Overall Survival

Time frame: Approximately 10 years

Measured from date of diagnosis until death, obtained from medical record notes
Toxicity due to Radiation Therapy as assessed by number of patients with adverse events

Time frame: Approximately 10 years

The number of patients that experience adverse events, obtained from medical record notes

Study contacts

Contact information is provided by the study sponsor or research team.

Betsy Sawdy, MSN

CONTACT

[email protected]

2029192551

Ethan Arnone, BS

CONTACT

[email protected]

2029192533

Sponsors and collaborators

Lead sponsor

Sidney Kimmel Comprehensive Cancer Center at Johns Hopkins

Other

Collaborators

Clark Charitable Foundation Inc.

Registry information

Important dates

Study start: 2025
Primary completion: 2035
Study completion: 2040
First posted: Aug 19, 2025
Registry last updated: Nov 5, 2025

OpenTrials presents study information sourced from ClinicalTrials.gov. The official registry record should be consulted for the latest information.

View the official ClinicalTrials.gov record (opens in a new tab)

This listing is for discovery and informational purposes only. It is not medical advice, does not guarantee that a study is recruiting, and does not determine eligibility. Contact the study team and a qualified healthcare professional when considering participation.

Published trials that share one or more normalized conditions with this study.

Recruiting