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OpenTrials
Active, Not Recruiting

NCT Number: NCT05035667

Patient Considerations of Social Media Account Management After Death

This study examines how supportive care clinic patients have made decisions or had discussions about how their caregivers or family should manage their social media account(s) after death. Collecting information on the use of social media and preferences will allow for a better understanding of patient's needs in the dying process and may identify populations in need of education, identify a possible source of anxiety and stress, and allow for an informed discussion of digital legacy.

Active, Not Recruiting

This study is active but is not currently recruiting participants.

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Key information

Age range

18 year and older

Sex eligibility

All sexes

Study type

Observational

Primary location

M D Anderson Cancer Center

Houston, Texas, 77030, United States

About this study

PRIMARY OBJECTIVE:

I. Identify the proportion of patients with advanced cancer in the supportive cancer clinic who have had discussions regarding their social media account (e.g. Facebook, Twitter, Instagram) management after death.

SECONDARY OBJECTIVE:

I. Identify the proportion of social media participation among advanced cancer patients seen in the supportive care clinic.

II. Evaluate the baseline awareness advanced cancer patients seen in the supportive care clinic have regarding how their Facebook account may be managed after death.

III. Evaluate affect changes and distress as a result from the conversation regarding their social media account management after death.

IV. Evaluate if discussion of social media account management among patients with advanced cancer in the supportive cancer clinic will increase their awareness of and motivation to address their social media account management options.

OUTLINE:

Patients complete questionnaires over 30 minutes about level of anxiety and social media use and management.

Who can participate

Healthy volunteers accepted: No

Only the study team can determine whether someone qualifies for participation.

Inclusion criteria

  • Patients with at least 1 follow-up visit to the outpatient Supportive Care Clinic at MDACC
  • Patients with any type of advanced cancer
  • Patients aged 18 years or older
  • Patients who have used social media
  • Patients able to read and write in English

Exclusion criteria

  • Delirium as diagnosed by treating Supportive Care Center (SCC) physician or Memorial Delirium Assessment Scale (MDAS) score >= 7

Treatment and study plan

Questionnaire Administration

Other

Complete questionnaires

Primary outcomes

  1. Proportion of patients with advanced cancer in the supportive cancer clinic who have had discussions regarding their social media account

    Time frame: through study completion, an average of 1 year

    Will be measured by Question 10 in the survey: "I have had conversations with my family or friends regarding how I would like any of my social media accounts managed after death", which contains five options: Strongly Disagree, Disagree, Neither Agree or Disagree, Agree, or Strongly Agree. The results will be dichotomized into either "Strongly Agree/Agree" or "Neither Agree or Disagree/ Disagree/Strongly Disagree". A two-sided 95% confidence interval will extend a maximum of 0.063 from the proportion of main interest.

Sponsors and collaborators

Lead sponsor

M.D. Anderson Cancer Center

Other

Registry information

Official study title

Social Media Use in Advanced Cancer: Patient Considerations of Social Media Account Management After Death

Important dates

Study start
2020
Primary completion
2026
Study completion
2026
First posted
Sep 5, 2021
Registry last updated
Apr 16, 2026

OpenTrials presents study information sourced from ClinicalTrials.gov. The official registry record should be consulted for the latest information.

View the official ClinicalTrials.gov record (opens in a new tab)

This listing is for discovery and informational purposes only. It is not medical advice, does not guarantee that a study is recruiting, and does not determine eligibility. Contact the study team and a qualified healthcare professional when considering participation.

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