PATHWAYS in Europe

Introduction: One out four people experience any long-lasting health problem in Europe. Individuals with chronic diseases often experience work-related problems, leading to negative consequences at individual and societal level. The rising prevalence of chronic diseases as well as the current economic recession made this issue even more problematic, requiring action in terms of innovative strategies to improve the participation of these persons in the labor market.

The PATHWAYS objectives are:

• To identify integration and re-integration strategies that are available in Europe and beyond and to determine their effectiveness (systematic literature review)
• To assess the specific employment related needs of persons with chronic diseases and mental disorders (e-survey including people with chronic health conditions)
• To develop guidelines supporting the implementation of effective professional integration and reintegration strategies. (expert consultation survey)

Methods:

PATHWAYS is a multi-informant approach study. Information will be gathered from different sources:

• Systematic literature review,
• An expert consultation study (Including NGOs, patient's organizations and advocacy organizations operating at European Level). Experts will be searched by Internet. Questionnaire will be completed by e-mail
• an e-Survey including people with chronic health conditions. The Clinical Record Form (CRF) will be online (Google forms). Participation will be free. Any people who meet the inclusion criteria can log in and complete it. The dissemination of the CRF will be done via relevant patient's associations. The CRF will be also published in the patient association's websites, if possible

Hypothesis:

• Literature will focus on the negative points of experiencing chronic health problems in the workplace rather than analysing the professional needs of people with these health conditions
• There will be a set of professional needs that will be shared across different chronic health condition groups and that can be targeted in common preventive strategies
• There will be a considerable gap between the existing employment strategies (i.e. services, systems and policies) and the real employment needs of people with chronic health conditions

As PATHWAYS include different studies and methodologies, different inclusion and exclusion criteria are defined for each study

People with Chronic health condition study:

Inclusion criteria

• People with self-reported diagnosis of chronic health conditions (i.e Diabetes, Chronic obstructive Pulmonary Disease, Major Depression, Dysthymia, Migraine, Back & Neck Pain, Cancer, Ischemic Heart Disease)
• Participants living in European Union (EU-28)
• Working age: 18-65 years

Exclusion criteria

• Younger than 18 years
• No residents in European Union (EU-28)

Expert consultation study:

Inclusion criteria

• People working in Advocacy organizations. These organizations should meet all the following criteria: i) their main activities should be addressed at (re)integrating people with chronic health conditions into the workforce ii) they should operate at European level, and iii) they should have at least 3 years of experience in the field.
• Working age: 18-65 years

Exclusion criteria

• Advocacy organizations not operating at European Union Level