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Completed

NCT Number: NCT00549731

Participant Database for Autism Research Studies

The purpose of this study is to create a subject database to recruit for current and future studies in research on autism and other neurodevelopmental disabilities.

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Key information

Conditions

Autism Spectrum Disorder Autistic Disorder Behavior Child Development Disorders, Pervasive Communication Language Mental Disorders Neurodevelopmental Disorders

Age range

14 year–32 year

Sex eligibility

All sexes

Study type

Observational

Primary location

Martinos Center of Biomedical Imaging

Charlestown, Massachusetts, 02129, United States

About this study

Aim 1: to recruit people interested in research on autism and other neurodevelopmental disabilities

Aim 2: to complete a diagnostic assessment, to confirm the diagnosis of autism spectrum disorder or other developmental disability (e.g., developmental language delay) in our patient population and rule out a diagnosis of autism spectrum disorder and other comorbid conditions in our control group

Aim 3: to maintain subject information in a database, from which we can recruit for our studies

Who can participate

Healthy volunteers accepted: Yes

Only the study team can determine whether someone qualifies for participation.

Inclusion criteria

  • Typically-developing, healthy adolescents and adults (ages 14-32)
  • Adolescents and adults with autism spectrum disorder (ages 14-32)

Exclusion criteria

  • Extreme premature birth (<34 weeks)
  • Known genetic disorders related to autism (e.g. Fragile X)
  • Recent diagnosis of psychosis (within 6 months)
  • Some other psychiatric diagnoses may be excluded following screening (e.g. Tourette's syndrome).
  • Metal implants / permanent retainers / hair dyes with metallic components

Sponsors and collaborators

Lead sponsor

Massachusetts General Hospital

Other

Collaborators

  • National Institute of Mental Health (NIMH)
  • National Institutes of Health (NIH)

Registry information

Official study title

Database for Persons Interested in Research Studies of Developmental Disorders

Important dates

Study start
2013
Primary completion
2023
Study completion
2023
First posted
Oct 26, 2007
Registry last updated
Apr 24, 2026

OpenTrials presents study information sourced from ClinicalTrials.gov. The official registry record should be consulted for the latest information.

View the official ClinicalTrials.gov record (opens in a new tab)

This listing is for discovery and informational purposes only. It is not medical advice, does not guarantee that a study is recruiting, and does not determine eligibility. Contact the study team and a qualified healthcare professional when considering participation.

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