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Recruiting

NCT Number: NCT05066763

Parkinson's Foundation Surveys

Parkinson's Foundation Surveys is an initiative seeking to periodically survey people with Parkinson's disease (PD), their care partners and medical professionals to better understand specific aspects of living with PD.

Recruiting

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Key information

Conditions

Parkinson Disease Basal Ganglia Diseases Brain Diseases Central Nervous System Diseases Movement Disorders Nervous System Diseases Neurodegenerative Diseases Parkinsonian Disorders Synucleinopathies

Age range

18 year and older

Sex eligibility

All sexes

Study type

Observational

Primary location

Parkinson's Foundation

Miami, Florida, 33131, United States

Location status: Recruiting

Location contact

James C Beck, PhD

PRINCIPAL_INVESTIGATOR

Megan Feeney, MPH

CONTACT

[email protected]

646-388-7674

Who can participate

Healthy volunteers accepted: No

Only the study team can determine whether someone qualifies for participation.

Inclusion criteria

  • Willingness to be contacted by the Parkinson's Foundation for surveys and any future research opportunities
  • Anyone who self-reports that they have a diagnosis of Parkinson's disease
  • Care partner of a person with Parkinson's disease
  • Any health professional that regularly works with people with Parkinson's disease
  • 18 years of age or older

Exclusion criteria

  • People who report that they do not have a diagnosis of Parkinson's disease, are not a care partner to someone with PD or do not work with people with PD in the health setting
  • An individual younger than 18 years of age

Treatment and study plan

Non-Interventional

Other

non-interventional

Primary outcomes

  1. Total number of survey respondents

    Time frame: 10 years

    Total number of survey participants who consent into the study

Sponsors and collaborators

Lead sponsor

Parkinson's Foundation

Other

Registry information

Important dates

Study start
2021
Primary completion
2030
Study completion
2030
First posted
Oct 4, 2021
Registry last updated
Oct 4, 2021

OpenTrials presents study information sourced from ClinicalTrials.gov. The official registry record should be consulted for the latest information.

View the official ClinicalTrials.gov record (opens in a new tab)

This listing is for discovery and informational purposes only. It is not medical advice, does not guarantee that a study is recruiting, and does not determine eligibility. Contact the study team and a qualified healthcare professional when considering participation.

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