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NCT Number: NCT07491939

Palliative and Supportive Care to Help People With Arthritis to Live Well (ENRICH)

Palliative Care (PC) focuses on maximising quality of life and care for patients and their families in the last 1000 days of life. Supportive Care (SC) is provided earlier in life for people with a long-term health condition.

People living with inflammatory arthritis, (such as rheumatoid arthritis) can experience ongoing pain, stiffness, limitations in their joints, and intrusive fatigue. This impacts daily living activities and emotional well-being. People with inflammatory arthritis would value support to manage symptoms across the course of their disease. They would like PC healthcare professionals (HCPs) to understand their conditions better, so they can live well to the end of their lives.

Aims:

The investigators will explore the potential role of Palliative and Supportive Care (PSC) for people with inflammatory arthritis. The investigators will describe any unmet patient need. The investigators will develop clinical and research recommendations to help people with inflammatory arthritis live well over the course of their disease.

Plan:

The investigators research will be conducted in three studies:

Study 1: The investigators will conduct 1:1 online interviews with people with inflammatory arthritis to understand how PSC is perceived by them, and what their views are on how PSC may support them to live well.

Study 2: The investigators will send an online survey to Rheumatologists, Primary Care, Community and PC HCPs, to understand:

* if and how they work together currently; * their views on the role of PSC supporting people with inflammatory arthritis to live well.

Study 3: The investigators will conduct online focus groups with volunteers from Studies 1 and 2, representatives from relevant national charities/organisations, and people who commission health services. Together the group will discuss the research findings and agree:

* what the gap in patient care is; * recommendations for future clinical practice and research; * the key areas of importance for patients which should be measured in future work

Recruiting

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Key information

Conditions

Inflammatory Arthritis Arthritis Joint Diseases Musculoskeletal Diseases Palliative Care

Age range

18 year and older

Sex eligibility

All sexes

Study type

Observational

Primary location

Who can participate

Healthy volunteers accepted: No

Only the study team can determine whether someone qualifies for participation.

Inclusion criteria

  • Adults (> 18 years) with a diagnosis of arthritis (Rheumatoid, Psoriatic or Juvenile Idiopathic) or Axial Spondyloarthritis
  • able to understand and communicate in verbal and written English (or via an interpreter nominated by the participant or provided via an agency by the research team)
  • in receipt, or not in receipt of Palliative Care services
  • access to Microsoft Teams or a telephone
  • consent to sharing preferred contact details

Exclusion criteria

  • Cognitive impairment that impedes communication
  • non-English speaker (should an interpreter not be available).

Treatment and study plan

None - observational study

Other

N/A as observational study

Primary outcomes

  1. Primary outcomes

    Time frame: through to study completion, an average of one year

    The primary outcomes for this research will be:

    • A description of the nature and scope of unmet patient need,
    • Clinical and research recommendations, informed by expert opinion and the 'six pillars' framework of the British Society of Lifestyle Medicine, which describe the potential role of PSC for people with inflammatory arthritis throughout the disease course.
    • Patient identified areas of importance which should be measured in future work.

Study contacts

Contact information is provided by the study sponsor or research team.

Dr Sharon Grieve Research Development and Delivery Lead, DPhil

CONTACT

[email protected]

00 44 1225 722988

Sponsors and collaborators

Lead sponsor

Dorothy House Hospice

Other

Collaborators

  • Royal United Hospitals Bath NHS Foundation Trust
  • University Hospitals Bristol and Weston NHS Foundation Trust
  • University of the West of England

Registry information

Official study title

Exploring Perspectives on Palliative and Supportive Care, to Inform Recommendations to Help People Live Well With Inflammatory Arthritis Throughout the Disease Course (ENRICH)

Acronym: ENRICH

Important dates

Study start
2026
Primary completion
2027
Study completion
2027
First posted
Mar 25, 2026
Registry last updated
Mar 25, 2026

OpenTrials presents study information sourced from ClinicalTrials.gov. The official registry record should be consulted for the latest information.

View the official ClinicalTrials.gov record (opens in a new tab)

This listing is for discovery and informational purposes only. It is not medical advice, does not guarantee that a study is recruiting, and does not determine eligibility. Contact the study team and a qualified healthcare professional when considering participation.

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