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Completed

NCT Number: NCT02753452

Optimizing Life Success Through Residential Immersive Life Skills (RILS) Programs for Youth With Disabilities

In Canada, between 3.6% and 7.7% of children under 19 years old are thought to have a chronic health condition that results in disability or limits to activity. These young people have difficulty finding jobs, attending school, living independently, and forming relationships with other people. These poorer life outcomes are partly the result of a lack of life skills. Life skills include the ability to solve problems and set goals, which allows youth to deal with the demands of everyday life. Several children's treatment centres in Ontario offer short-term residential immersive life skills (RILS) programs to provide youth with these life skills to help them take on adult roles. RILS programs are very promising in terms of making a long-term difference in youths' lives because they provide a place where youth can learn by doing, working with peers and taking risks in a safe environment. However, we do not yet know how well skills that are learned in RILS programs are kept up as time passes or how well RILS programs support broader skills, such as the ability to make one's own choices.

The proposed research will examine these issues and will ask the following questions:

1. What opportunities are youth given when they participate in RILS programs? What specific strategies do RILS service providers use to support youth in learning life skills?; 2. How do youth experience and perceive their participation in a RILS program, before, during and after they take part? What do their parents expect and experience in terms of their child's participation?; and 3. What changes do youth experience, particularly in terms of their ability to make choices for themselves and their sense of being able to cope with things that come up in their lives? The study will involve youth from several treatment centres in Ontario over the next three years.

Youth who are attending RILS programs will be compared with:

1. youth who are similar to the RILS youth, but who are taking part in a life skills program that is not residential; 2. youth who applied to a RILS program and were accepted, but who will take part in the program in a different year; and 3. a group of youth who are similar to the RILS youth but who are not taking part in any life skills program.

Youth will provide data at four time points: before the program starts, immediately after the program finishes, three months after the program is over and 12 months after the program is over.

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Key information

Age range

14 year–21 year

Sex eligibility

All sexes

Study type

Interventional

Phase

Not applicable

Primary location

Holland Bloorview Kids Rehabilitation Hospital

Toronto, Ontario, M4G 1R8, Canada

Who can participate

Healthy volunteers accepted: No

Only the study team can determine whether someone qualifies for participation.

Inclusion criteria

  • All youth must be between 14 and 21 years of age, have a child-onset disability, be able to set goals for themselves, and speak English.
  • Parents who are enrolled must speak English.

Exclusion criteria

  • Youth with severe behavioral issues will be excluded, since these would restrict the youth's ability to participate in a group learning experience.

Treatment and study plan

Residential Immersive Life Skills programming

Behavioral

Non-residential life skills programming

Behavioral

Primary outcomes

  1. Change in Arc's Self-Determination Scale scores

    Time frame: Baseline, 1 week post intervention, 3 months post intervention, 12 months post intervention

Secondary outcomes

  1. Change in General Self-Efficacy Scale scores

    Time frame: Baseline, 1 week post intervention, 3 months post intervention, 12 months post intervention

Sponsors and collaborators

Lead sponsor

Holland Bloorview Kids Rehabilitation Hospital

Other

Collaborators

  • ErinoakKids Centre for Treatment and Development
  • McMaster Children's Hospital

Registry information

Official study title

Optimizing Life Success Through Residential Immersive Life Skills Programs for Youth With Disabilities

Important dates

Study start
2015
Primary completion
2021
Study completion
2021
First posted
Apr 27, 2016
Registry last updated
Mar 11, 2022

OpenTrials presents study information sourced from ClinicalTrials.gov. The official registry record should be consulted for the latest information.

View the official ClinicalTrials.gov record (opens in a new tab)

This listing is for discovery and informational purposes only. It is not medical advice, does not guarantee that a study is recruiting, and does not determine eligibility. Contact the study team and a qualified healthcare professional when considering participation.