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OpenTrials
Completed

NCT Number: NCT05351528

of Caregiver Family Members for the Disabled in Bukhara

The responsibilities of caring for a disabled family member may cause caregivers to develop risky behaviors for caregiver's health. Therefore, we aimed to examine the relationship between caregiver burdens and healthy lifestyle behaviors of family members caring for a disabled child.

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Key information

Conditions

Caregiver Burden Behavior Behavioral Symptoms Stress, Psychological

Sex eligibility

All sexes

Study type

Observational

Primary location

Karadeniz Technical University

Trabzon, 61000, Turkey (Türkiye)

About this study

In the study, family members living in Bukhara, Uzbekistan, and caring for a disabled person under the age of 24 were evaluated. Caregiver burden was evaluated with the Caregiver Burden Scale and healthy lifestyle behaviors were evaluated with the Healthy Lifestyle Behaviors Scale II. The fact that there is no earlier study on caregivers of disabled people in Uzbekistan and no research in the literature examining the relationship between caregiving burden and healthy lifestyle behaviors in individuals with disabled children, make this study unique.

Who can participate

Only the study team can determine whether someone qualifies for participation.

Inclusion criteria

  • Volunteering to participate in the study
  • Having a disabled child to take care of
  • Being literate

Exclusion criteria

  • The age of the disabled person being cared for is over 24 years old.

Treatment and study plan

Questionnaire

Other

Caregiver burden and healthy lifestyle behaviors were evaluated.

Primary outcomes

  1. Socio-demographic information

    Time frame: Two months

    Age, height, body weight, employment status, income status, marital status

  2. Number of child

    Time frame: Two months

    Number of healthy and disabled children

  3. Assessment of the child age

    Time frame: Two months

    Age

  4. Assessment of the child

    Time frame: Two months

    Gender

  5. Caregiver Burden Scale

    Time frame: Two months

    The scale has a Likert-type rating ranging from 0 to 4 as "never, rarely, sometimes, quite often, almost always". A minimum of 0 and a maximum of 88 points can be obtained from the scale. The items in the scale are generally related to the social and emotional domain, and a high score indicates a high level of distress.

Secondary outcomes

  1. Healthy Lifestyle Behaviors Scale II

    Time frame: Two months

    The scale is scored as "never (1)-regularly (4)". The lowest score for the whole scale is 52 and the highest score is 208. The high scores obtained from the scale indicate how high the individual applies the specified health behaviors.

Sponsors and collaborators

Lead sponsor

Karadeniz Technical University

Other

Registry information

Official study title

Relationship Between Burdens and Healthy Lifestyle Behaviors of Caregiver Family Members for the Disabled in Bukhara

Important dates

Study start
2021
Primary completion
2021
Study completion
2022
First posted
Apr 28, 2022
Registry last updated
Apr 28, 2022

OpenTrials presents study information sourced from ClinicalTrials.gov. The official registry record should be consulted for the latest information.

View the official ClinicalTrials.gov record (opens in a new tab)

This listing is for discovery and informational purposes only. It is not medical advice, does not guarantee that a study is recruiting, and does not determine eligibility. Contact the study team and a qualified healthcare professional when considering participation.

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