Nurse-led Integrated Home Service to Support Parents in Symptom Management for Children Requiring Respiratory Support

The scale consists of 18 items to measure the self-efficacy of Chinese caregivers. It is rated on a 9-point scale, with 1= no confidence, to 9 =full confidence.

Semi-structured interviews will be conducted to the related community stakeholders to evaluate the quality of service provided. Semi-structured interview guide will be used to collect qualitative data in four perspectives including:

• reach: document the number of participants, and retention in the intervention
• adoption: seek to find out if the intervention is appropriate and in action
• implementation: understand stakeholders' perception if the intervention is acceptable and implemented as planned
• maintenance: explore the facilitators and barriers in the sustainability of the nurse-led integrated home service

This is a modified 40-item Memorial Symptom Assessment Scale (MSAS in Chinese version). The items for measuring the frequency and severity of symptoms are rated on a 4-point Likert scale from one (almost never) to four (always). The items for measuring distress are rated on a 5-point Likert scale from one (not at all) to five (very). A higher score on each subscale indicates the child is experiencing more symptom burden.

This is a record used to summarize a child's visits to outpatient clinic and emergency room, and the child's admission history. Higher non-scheduled health visit rates mean the child's health condition worsen

DASS is a self-report instrument consisting of 21 items used to assess the states of depression, anxiety and stress in parents. It is rated on a 4-point scale from 0 (does not apply to me at all) to 3 (applies to me very much, or most of the time). A higher score on each subscale indicates more severe symptoms of depression, anxiety and stress.