Neuropsychological and Psychosocial Follow up of Children and Adolescents With Neuromuscular Disease

This project is a retrospective and prospective investigation of neuropsychological and psychosocial development of children with a neuromuscular disease.

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Key information

Conditions

Neuromuscular Diseases Nervous System Diseases

Age range

Up to 18 year

Sex eligibility

All sexes

Study type

Observational

Primary location

UZ Leuven

Leuven, 3000, Belgium

Location status: Recruiting

Location contact

sam Geuens

CONTACT

[email protected]

About this study

This project is a retrospective and prospective investigation of neuropsychological and psychosocial development of children with a neuromuscular disease. Children and adolescents in UZ Leuven will be evaluated according to a psychosocial and neuropsychological protocol including different psychological tests and patient questionaires.

Who can participate

Healthy volunteers accepted: No

Only the study team can determine whether someone qualifies for participation.

Inclusion criteria

children and adolescents (0-18 years)
diagnosis of neuromuscular disease

Treatment and study plan

Primary outcomes

Neuropsychological profile (questionnaires, neuropsychological testing) of children with myotonic dystonia type 1

Time frame: one year

Compare the outcome of the questionnaires, IQ test and other neuropsychological test to a normal population

Study contacts

Contact information is provided by the study sponsor or research team.

Sam Geuens, Master

CONTACT

[email protected]

+32 16 34 19 91

Sponsors and collaborators

Lead sponsor

Universitaire Ziekenhuizen KU Leuven

Other

Registry information

Important dates

Study start: 2014
Primary completion: 2025
Study completion: 2025
First posted: Oct 1, 2014
Registry last updated: Jul 3, 2024

OpenTrials presents study information sourced from ClinicalTrials.gov. The official registry record should be consulted for the latest information.

View the official ClinicalTrials.gov record (opens in a new tab)

This listing is for discovery and informational purposes only. It is not medical advice, does not guarantee that a study is recruiting, and does not determine eligibility. Contact the study team and a qualified healthcare professional when considering participation.

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