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NCT Number: NCT06691048

Neurodevelopmental Disorder Diagnosis During Adulthood

The prevalence of neurodevelopmental disorders (specific learning disorders: dyslexia, dysorthographia, dysgraphia and dyscalculia; communication disorders; developmental coordination disorders; attention deficit disorder with or without hyperactivity (ADHD); intellectual disability (ID) and autism spectrum disorders) in the general population is very high, representing over 15% of the paediatric population. Among this population, between 40% and 90% remain symptomatic into adulthood. In addition to the part of the population diagnosed in childhood and lost to the transition to adulthood, a significant part of this population remains unidentified and therefore untreated (up to 60%). It is in adulthood that the diagnosis of neurodevelopmental disorders must be identified as being at the origin of at least some of the cognitive dysfunctions observed: failure at school, difficulties in socio-professional integration... Thus, the lifelong care diagnostic pathway needs to be developed both from an organizational point of view and in terms of the scientific knowledge required to best organize a personalized health pathway for this population. The current challenge for this population is to offer a structured care pathway, from diagnosis to care and medico-social integration.

This project will provide comprehensive, homogeneous data for cohorts of patients requiring diagnostic advice and lifelong management of their disorders. Thesecomprehensive data will contribute to scientific publications on patient cohorts. At present, very few centers have complete, homogeneous data on late-diagnosis adults, so our project will have a scientific and academic impact in its own right.

Recruiting

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Key information

Conditions

Neurodevelopmental Disorders Mental Disorders

Age range

18 year–55 year

Sex eligibility

All sexes

Study type

Observational

Primary location

Hospices Civils de Lyon

Bron, 69500, France

Location status: Recruiting

Location contact

Aurélie RICHARD-MORNAS, MD

CONTACT

[email protected]

4 72 35 70 44 ext. +33

Who can participate

Healthy volunteers accepted: No

Only the study team can determine whether someone qualifies for participation.

Inclusion criteria

  • Men or women aged 18 or over
  • Men or women under 55 years of age
  • Patients with a neurodevelopmental disorder according to the latest DSM5 criteria diagnosed after age 18
  • Patient with sufficient visual and auditory skills, oral and written language in French accessible to clinical and neuropsychological evaluation.

Exclusion criteria

  • Patients with intellectual disabilities
  • Patients with serious addictive and/or psychiatric comorbidities

Treatment and study plan

Description of an adult population diagnosed late with a neurodevelopmental disorder

Other

Clinical description during diagnostic interview

Primary outcomes

  1. Clinical Characteristics in Late-Diagnosed Adults with Neurodevelopmental Disorders

    Time frame: At the inclusion

    Social Data: Number of participants with specified social characteristics (e.g., employment status, living arrangements, education level).

  2. Clinical Characteristics in Late-Diagnosed Adults with Neurodevelopmental Disorders

    Time frame: At the inclusion

    Environmental Data: Number of participants with specified environmental factors (e.g., access to care, socioeconomic status).

  3. Clinical Characteristics in Late-Diagnosed Adults with Neurodevelopmental Disorders

    Time frame: At the inclusion

    Health Data: Number of participants with specific health characteristics (e.g., comorbid conditions, history of mental health support, medication use).

Sponsors and collaborators

Lead sponsor

Hospices Civils de Lyon

Other

Registry information

Official study title

Descriptive Study of Adult Patients Diagnosed Later with a Neurodevelopmental Disorder and Their Management

Acronym: NeuroDevAD

Important dates

Study start
2024
Primary completion
2024
Study completion
2024
First posted
Nov 15, 2024
Registry last updated
Nov 15, 2024

OpenTrials presents study information sourced from ClinicalTrials.gov. The official registry record should be consulted for the latest information.

View the official ClinicalTrials.gov record (opens in a new tab)

This listing is for discovery and informational purposes only. It is not medical advice, does not guarantee that a study is recruiting, and does not determine eligibility. Contact the study team and a qualified healthcare professional when considering participation.

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