Measuring Patient Reported Needs in Outpatient Liver Disease Management

Patients with chronic liver disease (CLD) are a medically and socially vulnerable population who often face significant health-related social needs (HRSNs), such as financial strain, housing instability, limited access to transportation, and lack of social support. These unmet needs contribute to poorer health outcomes and higher healthcare utilization, yet there is currently no validated screening tool specifically designed for patients with CLD. In addition, little is known about whether patients want their healthcare providers to address these needs, or how providers might use such information in routine practice.

This study is designed to measure the prevalence of HRSNs in patients with CLD receiving care in outpatient liver clinics, and to explore patient and provider perspectives on the role of HRSN screening in clinical care. Patients will complete surveys assessing HRSNs, health literacy, quality of life, social support, and patient activation, with additional demographic and clinical information obtained from chart review. Providers will complete surveys regarding their experience and potential use of HRSN data.

By combining patient- and provider-reported data, this study will generate new insights into the burden of unmet social needs in CLD, patient preferences for assistance from their care team, and provider attitudes toward incorporating HRSN data into clinical management. Findings are expected to inform the development and implementation of standardized HRSN screening approaches in liver disease care, with the broader goal of improving patient-centered outcomes and aligning with evolving healthcare quality standards.

Inclusion criteria

• Patient Inclusion criteria

• Age 18 or greater
• English speaking
• Ability to give consent (West Haven stage 0-1 if history of hepatic encephalopathy)

Provider Inclusion Criteria • Participated in patient care during inclusion visit

Exclusion criteria

• Patient Exclusion criteria

• History of liver transplant
• Individuals not willing to participate in the survey
• Patients with severe cognitive impairment

Provider Exclusion Criteria

• Unable to complete survey within 7 days of the inclusion visit