Mastocytosis Registry (of Zurich)

The study aims to summarize patients with mastocytosis and hypertryptasämia (without underlying mastocytosis or no bone marrow biopsy) in relation to demographic information, clinical progress and treatment courses. Biologic samples are collected from available routine diagnostics (serum, skin tissue, gut mucosa, bone marrow, and others) for further use in experimental research.

Recruiting

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Key information

Conditions

Mastocytosis Hypertryptasemia Immune System Diseases Mast Cell Activation Disorders Neoplasms Neoplasms by Histologic Type Neoplasms, Connective Tissue Neoplasms, Connective and Soft Tissue

Sex eligibility

All sexes

Study type

Observational

Primary location

University Hospital of Zurich

Zurich, 8091, Switzerland

Location status: Recruiting

Location contact

Claudia Lang, MD

CONTACT

[email protected]

+41442551111

Who can participate

Healthy volunteers accepted: Yes

Only the study team can determine whether someone qualifies for participation.

Inclusion criteria

Adult patients with mastocytsis/hypertryptasemia which are treated at the university hospital of Zurich
available informed consent

Exclusion criteria

denied consent

Treatment and study plan

Primary outcomes

Demographics

Time frame: 2010-2025

In the registry we collect patient's demographic data e.g. age, gender, comorbidities, smoking, preexisting atopic disease and other to look for associations to mast cell diseases.
Disease progression

Time frame: 2010-2025

Patients will followed up over time to get more insight in disease progression.If there is progression detected (e.g. cutaneous mastocytosis to systemic mastocytosis or ISM to advanced forms) those cases will be carefully looked at to identify triggering factors and biomarkers.

Study contacts

Contact information is provided by the study sponsor or research team.

Claudia Lang, MD

CONTACT

[email protected]

+41442551111

Sponsors and collaborators

Lead sponsor

University of Zurich

Other

Registry information

Official study title

Genetic, Multiomic and Cytokine-based Mapping of Patients With Mastocytosis/Hypertryptasemia at the University Hospital of Zurich German: Mastozytose-Register: Datenerfassung Und Weiterverwendung Von Biologischem Material Von Patienten Mit Mastozytose, Welche am Universitätsspital Zürich Behandelt Werden

Acronym: MastoR

Important dates

Study start: 2024
Primary completion: 2025
Study completion: 2035
First posted: Jun 20, 2024
Registry last updated: Jun 26, 2024

OpenTrials presents study information sourced from ClinicalTrials.gov. The official registry record should be consulted for the latest information.

View the official ClinicalTrials.gov record (opens in a new tab)

This listing is for discovery and informational purposes only. It is not medical advice, does not guarantee that a study is recruiting, and does not determine eligibility. Contact the study team and a qualified healthcare professional when considering participation.

Published trials that share one or more normalized conditions with this study.

Completed